Posts made in September, 2009

This week I’m… encouraging grasping.

Posted on Sep 30, 2009 | 1 comment

An excellent suggestion from a reader, to use a soft baby hairbrush to stimulate May’s hands, has led me to this week’s focus. Having no hairbrush at hand, and being exceedingly lazy, I scanned the bathroom for an appropriate alternative. I settled on a soft hair roller (see photo below). This has the benefit of being stimulating to the touch, rolling across her and being easily grasped. May responded almost immediately to this new technique. It also gives me the opportunity to flood the internet with yet more adorable photos of May. May helps with...

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Enough grrrr.

Posted on Sep 29, 2009 | 0 comments

That last post depressed me. Here’s some sunshine from this past weekend… May with her dad May climbing Old Sarum on a visit to...

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Two weeks and waiting…

Posted on Sep 29, 2009 | 0 comments

It’s been two weeks and still I haven’t spoken to May’s doctor – The Boss. After the first week of calls, he finally reached my husband. I phoned his PA and begged her “please, please” to have him call again because he had not answered the most urgent of questions: What were the results of the tests? Should we be raising May’s pyridoxine supplement? He didn’t call. I wrote an email detailing all my questions. Nothing. Another week passed. Yesterday, a flurry of more phones calls. One of the nurses on his team called me to say he would call last night. Nada. Finally, today, I lost it. I phoned his PA and she said, “Well, he did speak to your husband already and now he off-site for the rest of the day so I just don’t think there is anyway he will get a hold of you.” She was sharp and short. I think this must be a well-honed approach. After two weeks of polite, controlled responses, I shot back: “Frankly, I think that is appalling. I have a brain-damaged child here. I don’t know what to do about her medication. I know, he is busy and the director of the hospital, but he is also my daughter’s doctor. He needs to phone me back.” There was a long pause on the other end. “Um,” she said. “I would get the on-call doctor to phone you, but…” “But, he will just say that he needs to ask the Boss,” I finished. “Yes,” she murmured. Then, I called the nurse that I spoke to yesterday. Like most of the nurses, she is very kind. “He did say he was going to try and call you. May is very important to him.” I sighed and tried to hold my emotions in check. “Clearly, she is not important,” I said, “or he would have called already.” I’m not sure what to do at this point. He is an amazing doctor, but what good is he if I can never get a hold of...

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An Educated Woman Learns Something!

Posted on Sep 28, 2009 | 4 comments

An Educated Woman Learns Something!

I wanted a book that explained my baby’s brain. One that assumed the reader was intelligent, even if that reader was a parent. One that did not include adorable, powder-blue baby development charts. Today, that book arrived. What’s Going On In There? How the Brain and Mind Develop in the First Five Years of Life by Lise Eliot. I give you Chapter 6: “Why Babies Love to Be Bounced: The Precocious Sense of Balance and Motion” Bouncing! That’s all May wants to do. In fact, much of what I have been doing with May makes sense now. Even better, I finally feel like I’m learning something about May’s brain. I can build on what I’ve read and better shape my approach to meet her natural development. Illuminating and...

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May says, “No!”

Posted on Sep 25, 2009 | 5 comments

If you doubt May’s abilities, she will put you in your place! Warning: cute baby alert.  

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