The manner in which they published it has really pleased me. I was concerned that the title or photo would showcase the misery of our situation.
I imagined a photo of us, our faces bent forward under the weight of our tragic lives, beneath a title reading something like, “The Ever-Suffering Life of the Brain-Damaged Baby” or “Pity This Poor Brain-Damaged Baby.”
Having re-read those gems, it’s probably a good thing I’m not a sub-editor for The Guardian.
Instead, the editor and photographer picked up on the positivity of the piece, and reflected the love and admiration I have for my amazing daughter.
I’m one proud Mama today.
Photo accompanying the article: Martin Goodwin, 2009