Seizures, hospitals and apricot jam

You are here:

Home
2010
March

Monthly Archives: March 2010

Seizures, hospitals and apricot jam

March 31, 2010 at 22:48

Mama Lewis

Last week, May was admitted to the hospital for two nights to trial a new seizure medication, pyridoxal-phosphate (or, PP, as I will now call it) to replace pyridoxine. They are both Vitamin B6, just in different forms. Some babies react badly to PP. They “forget” to breath. They pass out. They don’t wake up. [...]

This week I’m… knocking things over!

March 27, 2010 at 23:05

Mama Lewis

Or, maybe I should say, knocking – very light, easily knocked – things over. Continuing May’s work with her hands, arms and sight, I’m focusing this week on her reaching forward to touch things. My sister inspired me. She bought May a stack of soft, light blocks as a gift. I have to admit, when [...]

And May said, “Let there be light…”

March 23, 2010 at 23:10

Mama Lewis

There is so much a baby can not tell her parents or doctors. Can she hear? Taste? Can she recognize her mother’s smell or her father’s beard chaffing her face? In the hospital, we were certain May could see. She seemed to scan the room with interest and focus on objects. In later months, closer [...]

Small Steps – Donate!

March 20, 2010 at 14:50

Mama Lewis

May and the Small Steps School for Parents are inspiring people young and old to get off their behinds! My friend Kate has mobilized her form group (that’s homeroom for you Americans) to raise money for May’s school. Katie was one of the first people to meet May back when she was in her incubator [...]

This week I’m… leaning on hands.

March 18, 2010 at 21:08

Mama Lewis

Let the jet lag begin. We are back in London. Our flight was fairly uneventful, save May projectile vomiting an entire bottle of milk into the aisle, and me showing more signs of foot in mouth disease. Two lovely air hostesses approached me on the plane to see if I needed anything. May ceased bouncing [...]