Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: email@example.com
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- April 23, 2014 // 1 Comment
- April 22, 2014 // 0 Comments
- April 18, 2014 // 4 Comments
- April 16, 2014 // 3 Comments
- April 15, 2014 // 3 Comments
- By Adrianne, April 23, 2014
- By Mama Lewis, April 22, 2014
- By Ellen S., April 21, 2014
- By Mama Lewis, April 19, 2014
- By Scott, April 19, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
This week my prevailing emotion was anger. With May, rather than assistance, it is as if systems are put in place to make our lives more difficult. I just fight and fight and fight those systems. I get what I need for May in the end, but I get it through conflict and begging. I […]
As promised, here is the letter I sent to my MP, Tessa Jowell. (For you Americans: an MP is like a senator except they serve a much smaller constituency.) I shortened the letter as many of the details are already here on the Nursery thread on this blog. Having said that, it is still very […]
She is free! She is brave! These are things we already knew about May, but now they are official. Today, May received her American citizenship. True story, from today at the American Embassy, London: Me: Hello, I’m applying for citizenship for my daughter. Them: (frowning) May I see your paperwork? (Me passes over paperwork.) We […]
It’s not as miserable as it sounds. I’m sitting in the dark. In the bathroom… with a giggling baby on my lap. In the summer months, it is almost impossible to find a space dark enough to stimulate May’s eyes with lights. So, we’ve retreated to the bathroom, where no light shines. Together we sit […]
What is the difference between a doctor and a secretary? That’s not a joke. This week there was no difference. Both asked after my daughter. Both offered no new information whatsoever. In fact, as far as services go, the secretary at least provided me with the form I requested. On Monday, we met with a […]