Posts made in June, 2010

A bit of praise…

Posted on Jun 25, 2010 | 6 comments

Two incredible things happened this week that reaffirmed my faith in medical professionals. May had a major meeting on Tuesday. I phoned May’s physio in advance to talk me down from my heights of anxiety. I didn’t sob or bite my fingernails to the quick. It was more like I was channelling Woody Allen. There was a lot of pleading and jokes at my expense, created by me. I begged her not to let me hear a phrase such as, “May has the mind of a 2-month old, in the body of a six-month old!” Hooray! May’s physio is reassuringly self-assured. She also indulges my manic...

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Father’s Day

Posted on Jun 21, 2010 | 1 comment

Father’s Day

Apologies in advance to all the other fathers out there. You lose. My husband is the best. Here’s what he taught me this year: - I can’t do it all. Possibly the most obvious statement of all time. I can’t say I’m a complete convert. - But, if I am capable of more than I imagined, it is because he is by my side. - In the worst situations, there are moments of comedy genius. (May thinks he is a professional comedian.) Incidentally, when I told him I was writing the sappiest post ever and it was about him, he gave me the finger. I love...

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This week I’m… giggling!

Posted on Jun 17, 2010 | 1 comment

Giggle! Heehee! Hahaha! All week it’s been Giggle Central here. I don’t spend all my time stalking government officials in the hopes of them changing policy for the better. My word. That would be crap-ola. No, here, we try to spend the majority of our time enjoying ourselves. Play and laughter help enormously when trying to get May to do any uncomfortable or difficult activity. Here’s some ways I use it: - in the bath I play “splashy splashy” with her arms, lifting them over her head before the big splash down - tickles under the arm which she loves - silly...

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Some progress…

Posted on Jun 16, 2010 | 0 comments

Progress with my fights, as opposed to May’s progress – although I will need to update the blog with that as well. She is incredible. Her latest thing is to react with hysterical giggles every time the phone rings. It is so much fun that we keep calling our own line to make her laugh. May’s referral to the Visual Development Clinic at Great Ormond Street is going through! I don’t believe in miracles, but do hope they will be able to shed some light on what May can and can’t see, so I can help her better with her vision. Also, Tessa Jowell, MP, emailed me that...

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Who is next?

Posted on Jun 12, 2010 | 3 comments

The official investigation into May’s case is over. They claim May’s one-on-one support was never approved, but they will reassess her needs. I assume that they will approve it at that time. If they don’t resolve this swiftly and in our favor, I’ve already told them we will sue for the funds. Like in every other situation regarding this, from when they cut her funding to writing the report, we, her parents, were not consulted at all. No reference to any of our conversations, nor the nursery’s, nor May’s team, were included in the final report. I would call...

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