Posts made in September, 2010

This week I’m… giggling and singing all day long.

Posted on Sep 22, 2010 | 3 comments

Giggling and laughing and out-of-breath-laughing-so-hard! What is so funny? Some jokes never get old: choo-choo, fake sneezes… classic baby stand-up. The last couple of weeks May has also been entertaining herself. No longer does she depend on the comedy genius of Mom and Dad. There are toys. Toys that make monkey sounds are particularly amazing. And, there are the sounds that come out of May’s own mouth. For Mom and Dad, these are the real delight. May isn’t making new sounds – the last new sound “bah” arrived two months ago – but she is using them...

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Family Gap Year

Posted on Sep 18, 2010 | 2 comments

Family Gap Year

Britain has an unhealthy obsession with family gap years. A gap year is what 18-year old kids do before they head to university. It’s a year out, doing something totally different in a foreign country. Sometimes it involves charity work – like building homes for a village community in Africa. Most of the time, it involves drinking in bars in Thailand in a bikini while discussing how amazing it is that poor people really know what happiness is, you know? But, lately, on television and in the newspapers, families are doing it. Mummy and Daddy are packing up little Tristan and...

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Profoundly disabled: ‘We wouldn’t have her any other way’

Posted on Sep 15, 2010 | 3 comments

Profoundly disabled: ‘We wouldn’t have her any other way’

There is something arresting in how plainly Rebecca Elliottshe describes her daughter’s brain damage and its unavoidable conclusion in the article¬†Profoundly disabled: ‘We wouldn’t have her any other way’ in The Independent last week. It was a moving portrayal, especially about how outsiders apply horrible labels and pity to us, when all we feel is love towards our children. And, she loves her daughter. The article is a beautiful expression of that love. But, still, I found the article disturbing. Like Elliot’s daughter, May is wonderfully happy. Gloriously...

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Seizures

Posted on Sep 12, 2010 | 0 comments

My daughter has seizures every day. At one point, they were as frequent as three times every five minutes. That is 864 every day. Did I just write that? May had over 800 seizures a day? As I mull over those numbers, a nauseating weight grows in my belly.¬† Yet,¬† I’m thinking even worse things; like… those were only the ones we saw. Some seizures don’t manifest themselves physically. It is a horrible thing to say, but May’s seizures were so frequent, that I’d discuss them as casually as the weather. If people stopped to ask if she was shaking from cold or fear,...

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A Conversation Overheard

Posted on Sep 8, 2010 | 4 comments

Conversation overheard between a decadently dressed Hippie-Mama, in flowing flower skirt and layers of pashminas and a poor waitress that is surely not paid enough for this nonsense: Hippie-Mama: (jabbing menu with nail) So, I see you only serve organic foods, but my son, Oliver, can’t tolerate cow’s milk, so-o-o-o, in philosophical solidarity, none of us drink any milk, but soy. So-o-o-o, I’ll take a soy milk de-caf latte and my daughter (gestures to identi-kit four-year old suffocating from beneath a mini-pashmina) will have the organic muesli. (flashes a pinched,...

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