This week I\'m... wearing my Supergirl Suit

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Monthly Archives: November 2010

This week I’m… wearing my Supergirl Suit

November 30, 2010 at 23:00

Mama Lewis

Behold! May the Superhero Princess! This week, a new weapon in her cuteness arsenal – her Supergirl Suit. May’s lycra suit is made to measure and fits like a glove. May has to be zipped into it at six points: front, back and both arms and legs. Once inside, I challenge you not to think [...]

Harris in Hell (for charity!) – UPDATED

November 25, 2010 at 17:04

Mama Lewis

Our good friend Andy Harris is running through Hell (literally – Hellrunner Down South) all in the name of Small Steps, the wonderful school that May and I attend every week. Good news that while Andy will destroy his body (and soul?), May has been enjoying Small Steps more and more each week. Despite their [...]

The Seizure Diet

November 21, 2010 at 23:28

Mama Lewis

Early after May’s release from the hospital, it became clear that for the doctors, May’s seizures were their biggest concern. Like the rest of her injuries, the cause of her seizures perplexed them. One by one, May trialled numerous seizure medications, seven so far; currently May takes four. The most recent addition, Lamotrigine, May began [...]

PODD (not a film about alien spacecraft)

November 17, 2010 at 23:41

Mama Lewis

Pragmatic Organisation Dynamic Display (PODD): the clumsiest mouthful of words meant to be a communication system, or a revolutionary system of communication for the speech impaired? Among the debates eternally raging in my mind, the one whereby I choose to adopt or rubbish a new therapy has to be the most challenging. Every week, I [...]

This week I’m… explaining how May stood up.

November 15, 2010 at 23:24

Mama Lewis

Many times I’ve heard that May’s progress is down to her parents. But, if May never learns to walk, whose fault will it be then? In my last post, I wrote about May’s ability to stand independently (and party til 4 am). The truth is, while I would like this blog to document May’s progress, I don’t know that [...]