Posts made in December, 2010

Merry Xmas Mama! This year you will receive…

Posted on Dec 25, 2010 | 12 comments

the gift of sitting without support! Normally, I would go into a long explanation of what led to sitting. But, in honor of the Christmas spirit, I will explain it off as a miracle of Christmas! (and stronger arms, better balance – from better vision, a year of stretching, one Supergirl Suit, an amazing nursery, devoted team, not to mention encouragement from Daddy and Mama!) [youtube=http://www.youtube.com/watch?v=v_KlPqv2iKs&hl=en&fs=1] Without a doubt, this is the best Christmas gift May could have given us. Children are astounding and, excuse my bias here, children like May...

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Funding Update

Posted on Dec 22, 2010 | 2 comments

After all my bluster, which isn’t too surprising considering the history of such things in our lives, it turns out the review was just a formality. The funding has passed and May will have it until it ends in March, as originally told. Also, contrary to what I initially heard, the nursery was informed of this December review date, so I can’t blame that on Lambeth. May’s team was told the funding would end in March, which is still true; with March on their minds, I think everyone assumed there wasn’t a review in between. Unfortunately, in this whole situation, we,...

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Lambeth to cut May’s funding again!

Posted on Dec 19, 2010 | 3 comments

I can not convey the deep and long intake of ┬ábreath, the frustration that twists my stomach into knots, the agonizing fear every time something like this happens – fear that my daughter’s safety will be compromised by the negligence of one administrator. An administrator who has no contact with my daughter; who has no concern or understanding or interest in her well-being; who is just doing a job and not doing it very well and probably isn’t all that concerned about that. The same woman who so disastrously handled my daughter’s case previously, contacted May’s...

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Would you pay to laugh at May?

Posted on Dec 15, 2010 | 9 comments

Would you pay to laugh at May?

Maybe that sounded like a rhetorical question. If you are a fan of Frankie Boyle, or had the unfortunate accident of seeing his new television show, laughing at May is part of the entertainment. I say “laughing at May” but Boyle performs jokes at her expense and the expense of all disabled children. He gets to the heart of what is so funny about a sweet, adorable child like May – namely that she is a waste of space. Or, worse, as he described Katie Price’s disabled son, Harvey, a rapist. I don’t struggle with the idea that Freedom of Speech should be restricted....

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