Posts made in January, 2011

The Amazing Half-Brained Baby blog has been taken over…

Posted on Jan 30, 2011 | 24 comments

The Amazing Half-Brained Baby blog has been taken over…

by a new baby! May will be a big sister in July! Congratulations May! You have much to teach a younger sibling about bouncing and giggles.

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This week I’m… drinking from a cup

Posted on Jan 25, 2011 | 4 comments

This isn’t meant to sound like an argument for the “just stimulate them the best you can/there is nothing you can do differently to help your brain-damaged child” camp. It is, however, meant to sound like an argument for “if you can find something they enjoy, they will figure out how to do it better/faster” camp. Of course, no one told me this before I invested in 1,000 sippy cups, only to have my daughter routinely laugh in my face and use them as chew toys. My daughter’s newest seizure medicine (the one she has been taking for the last few months) tastes...

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Disability cuts will hurt us deeply

Posted on Jan 21, 2011 | 2 comments

Disability cuts will hurt us deeply

Earlier this week, Riven Vincent announced on Mumsnet, an online forum for mothers, that she made the devastating decision to give up her daughter into the care of social services. Social Services would not provide her with more than six hours a week respite, and she desperately needed more. On The Guardian’s Comment is Free page, I wrote about her plight, one very familiar to me. In Britain, we are dependent on the goodwill of the State. My local council of Lambeth has to make savings of nearly £80 million over the next three financial years. Many people wrote into the site lambasting...

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The Big Move – Part II

Posted on Jan 19, 2011 | 4 comments

Hello? Landlords? Do you want a nice, young(ish), professional couple with a supremely adorable daughter, to come live in your perfect little house, on a perfect road, just a short walk to the local shops? Yes? Then, why haven’t you been calling me? I’ve made myself available. I’ve registered with all the estate agents in my area (that’s realtors for you Americans). But, I’ve had no luck. Oh wait. I remember now what is going on. It isn’t lack of interest. It is that I have a disabled daughter. Don’t get me wrong. No one is discriminating against us....

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The Big Move

Posted on Jan 9, 2011 | 4 comments

I sing a song to May – a silly, baby song meant to make her smile when she cries (and works – 98% of the time!). It is a silly song, but at its heart is a truth that is difficult for us. The song goes as follows (and here I’d like to formally thank Apple for not providing me with a microphone): Oh Baby May… you are so sweeeeet… Oh Baby May… you go tweet-tweet. TWEET-TWEET! Oh Baby May… I love you soooooo… Oh Baby May… Don’t ever grow. DON’T GROW! When she was really small, I’d sing that last part to her over and over in...

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