Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: email@example.com
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- February 17, 2014 // 2 Comments
- By Mama Lewis, March 6, 2014
- By Zvon, March 6, 2014
- By Rv, March 4, 2014
- By Mama Lewis, March 4, 2014
- By Claire Stockton, March 4, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
The Sleep Experiment
Here’s what May doesn’t understand about not being ill: It is not okay to scream for a cuddle at 2.30, 3.30 and 5 AM and then continue to scream until your smallest whim is met and you fall asleep in the arms of a distressed parent suffering from hallucinations he/she is so sleep deprived.
A private word to May (who reads this blog): You are fine. There is nothing wrong with you. Go to bed.
I’m going to experiment with my sanity for the next two nights. I’m going to pretend May is just a toddler, not a half-brained baby. I think (and who knows, maybe I’ll be proven right) that she is throwing typical two-year old tantrums. I refuse to believe she can not be broken of this habit.
Here is what I’ve done tonight:
2.30 AM May wakes up on cue and screams for Britain (a new Olympic sport)
2.45 I finish giving her some milk (May is still hungry in the night after her illness and we are trying to put the pounds back on her, so this one milk I allow.)
2.46 She is back in bed. She is not happy.
2.49 I pick her up. Cuddle cuddle. Down.
2.55 I pick her up. Cuddle cuddle. Down.
This continues with slightly longer intervals in between screams and cuddles until now (3.44! I want to die.) But, look…
Who will win The Sleep Experiment? (The crowd screams, “May!” One lone voice that sounds an awful lot like May’s mama screams, “Me!”)