Posts made in September, 2011

Finally. Questions from 2009. Answered.

Posted on Sep 30, 2011 | 15 comments

Finally. Questions from 2009. Answered.

I often think about the other parents. The ones who are in intensive care wards, or in the “bad news room” at the hospital awaiting results. The ones who are sitting next to incubators, who pray, who hope, who despair. We were them once. I had so many questions then. Not medical questions – questions for my future self. And, I expected every answer would filled with more misery than the next. Fast forward 2 1/2 years. How would I answer the questions of the woman I was? Question from me 2009: Does life suck? Answer from me 2011: No. Question: But, surely it does and you are...

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This week I’m… adding glasses to May’s cuteness arsenal (Photos!)

Posted on Sep 27, 2011 | 13 comments

Last night, in anticipation of the arrival of May’s glasses today, I asked to my husband, “Do you think the glasses will make a difference?” “No,” he said, bluntly. I made a kind of hmmm sound. The kind of sound wives make to husbands when a “no” isn’t quite a sufficiently long enough response. He looked up at me, since I was still looking at him, thought better of it, and continued. “Noooo, but I hope.” Like him, I can’t expect much more than that. I picked up the glasses today, less than two weeks after doctors discovered...

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Was this a scam to lure in special needs families?

Posted on Sep 23, 2011 | 7 comments

A few months ago, I entered a giveaway to receive a free iPad for May. It was the second giveaway the blog, called Marissa’s Bunny, ran. In the first, Mike, the writer of the blog, organized a raffle where for every $1,000 raised, a special needs family would receive a iPad. Tickets cost $2. In the first giveaway, 20 families were promised laptops. It doesn’t appear than any received them. Perhaps some did but, if so, the vitriol unleashed over the internet would imply few did. Why then open a second giveaway? There is much about this story that perplexes me. Since my initial...

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May’s been nominated! Spread the LOVE!

Posted on Sep 22, 2011 | 3 comments

May’s been nominated! Spread the LOVE!

If you think May is a superhero – if her Superior Power of Cuteness has directed you to read posts when really you should be working, there is no need to thank us. Who needs a job anyway? Mama and May approve of your devotion! Here are a few ways you can spread the LOOOOVE: 1. VOTE for us! Parents Magazine is running a Best Blog Awards contest and we are nominated for Best Special Needs Blog. 2. Can you help out May’s special school Small Steps School for Parents? The company Give-It-Away has donated in excess of £150,000 to Small Steps over the years by renovating and selling on...

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Social Services and the Case of the Respite Request

Posted on Sep 21, 2011 | 6 comments

You know why I love social services so much? Because working with them is an adventure; I never know what to expect next. What fun! Plus, I get to really focus on what May can’t do. That’s something I love doing. Today, a social worker called to confirm an appointment. Her call was the first I heard of it. Today. An appointment at 3.00 today. I couldn’t figure out what this appointment could be for. Then, I had a sudden realization, “Wait! Is this about respite care for May?” Turns out it was. So, I said I was free. The information the social worker collects...

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