Posts made in December, 2011

We interrupt your normal service to bring you…

Posted on Dec 28, 2011 | 3 comments

We interrupt your normal service to bring you…

…Ieuan! Unfortunately, May has spent the last three days (and nights, let’s not forget the nights) teething. It is so bad that she is refusing almost all liquids. We have gotten 1 1/2 seizure doses down her of the last four. And, tonight, I noticed part of her gum was bleeding. So, no drinking, no eating, lots of crying (both of us) and no Christmas. We have yet to open our gifts. For this reason, I have zero photos of May in what was meant to be her Christmas outfit. I can assure you it is adorable, if unworn. She did manage her Christmas pajamas, but we have no photos of those....

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I think I’m a bit of a hypocrite

Posted on Dec 24, 2011 | 7 comments

I think I’m a bit of a hypocrite

Ever since I started writing on Mama Lewis, I’ve begged people to treat me no different because I am the parent of a disabled child. It hasn’t worked. I didn’t expect it would, but I tried anyway. There are still people who write in to me on a regular basis who I’m sure do it because they feel it is a public service. And, of course, there are very few people who write in to tell me they are insulted or horrified by anything I say. Either everything I write, all my opinions – even all my photos – are wonderful, or people feel too uncomfortable to tell me...

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NOW That’s What I Call Music! 2 1/2 (VIDEO)

Posted on Dec 18, 2011 | 3 comments

NOW That’s What I Call Music! 2 1/2 (VIDEO)

Throw away your mass market trash, people. May has compiled her own list of essential tunes. Top hits from the past year. Listen and learn: 1. Happy Birthday – This track is a classic! I bet you thought it was just for birthdays? Nah-uh. 2. ABCs – Another classic that’s also not just for birthdays. This tune stopped May’s seizures when seizures were king. 3. David Bowie – too many to mention. Needs a whole post. 4. Andrea Bocelli – I don’t get this one, but May’s Nana swears it’s true. 5. The telephone ringing – technically not a...

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This week I’m… bopping May on the head

Posted on Dec 14, 2011 | 4 comments

This week I’m… bopping May on the head

Like Little Bunny Foo-Foo, May enjoys a bop on the head. Except, she wants her head bopped, not a field mouse. Here’s a little video of us, at home, doing physio. NEWSFLASH: Physio can be fun. May loves going to her private physio and also the work she has us do at home. She encourages us to incorporate the work into play, and seeing May’s smile here – who would deny that this is the way to go? I’m sure the physio would describe this exercise in a far more technical and professional way, but the result of bopping May on the head is that she feels the reverberations...

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5 things that break this mama down

Posted on Dec 9, 2011 | 2 comments

5 things that break this mama down

With a child like May, I like to stay positive. Relentless positivity. Which is exactly as it sounds – forced. Forcing myself to act positive eventually turns into real positivity and happiness, by virtue of engaging with the reality of May. And, by that, I don’t mean the reality of her disabilities – I mean facing up to the reality of her being a deliciously warm, giggly and affectionate little girl. It is a method that has served me well. But, even I have my breaking points and, this week, I had several. Nothing about her day-to-day care ever does it. I think that’s...

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