Posts made in January, 2012

It’s ALL fun and games (VIDEO)

Posted on Jan 29, 2012 | 9 comments

It’s ALL fun and games (VIDEO)

That’s right! It really is all fun and games here. Fun should be at the root of everything we do for May’s development. It is exactly what we aim all of May’s exercises, stretches, stimulation to be about. The single greatest motivation is fun. Make ‘em laugh, parents. Make ‘em laugh. Carrying on from the last post, here is a video where May is riding across my husband’s knee and loving it. She is using a disconnected movement – meaning one leg at a time, shifting at her hips, as opposed to pushing down with both legs at the same time). She...

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This week I’m… ordering you to drop and roll (VIDEO)

Posted on Jan 23, 2012 | 5 comments

This week I’m… ordering you to drop and roll (VIDEO)

  DROP AND ROLL! THAT’S AN ORDER! But, before you do… let’s all take a large step back and remember that I am not a trained physiotherapist. I only distort and regurgitate what they teach me, for you here. As you are probably aware, May’s brain damage creates a stiffness throughout her whole body. Her muscles get the wrong signals from her brain. Some children with May’s level of brain damage are literally like planks – or so I’ve been told. Despite her stiffness, May loves movement – and don’t think I am not grateful for that every...

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May knows her own mind. Don’t mess with her.

Posted on Jan 21, 2012 | 9 comments

May knows her own mind. Don’t mess with her.

For all May starting school has taught me, there has been one unexpectedly remarkable thing – one thing about May I didn’t truly know until this week despite hearing her key worker speak up for her at a major transition meeting weeks ago. “May knows her own mind,” she said. “If she likes you, you will know it. And if she doesn’t, she will let you know.” She wanted people to understand that May’s weak cognitive abilities did not exclude a sharp barometer of bullshit. And, just because May can’t speak doesn’t mean she is unable to...

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Last week kicked my ass

Posted on Jan 15, 2012 | 5 comments

Last week kicked my ass

Everyone I have met so far, at May’s new school, is amazing. They are enthusiastic, devoted and in love with the children they teach. I want say that first because – for me – May starting school last week was an exercise in torture. I want to make it clear from the start that this had nothing to do with the people at the school and everything to do with me coming to terms with the idea that my daughter will attend a special needs school. I had to control myself to not race from the building every day, hour after hour. Because it is torture – I know I said that before,...

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I survived May’s first day at school.

Posted on Jan 10, 2012 | 7 comments

I survived May’s first day at school.

Congratulations me! May also survived her first day of school. Here it is summed up: Wake up: Giggles! Enter classroom: Tears! Leave to drive home: Giggles! This is in no way a reflection on her school or teacher (who is lovely btw). It is also no reflection on her classmates (very cute) or the activities which included lots of songs May loved. Unfortunately, as soon as any song stopped, or bouncing ceased – crying began.   I was asked more than once. “Is she in pain?” “No,” I explained, “She’s just bored. She wants to sing and bounce.” I...

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