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Monthly Archives: February 2012

An open letter to doctors

February 24, 2012 at 15:19

Mama Lewis

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Look at May. What if I did "nothing" as some doctors suggest?Look at May. What if I did "nothing" as some doctors suggest?

If you are a doctor, I would really appreciate it if you read this. If you read nothing else of the post, take this away: before diagnosing a child, review her history, look her parents in the eye and don’t give them “scripted” answers. Some of you call it “professional distancing” but I call it […]

What is happening to the NHS?

February 22, 2012 at 16:32

Mama Lewis

1

May's last night in hospital. One of the least profitable moments in NHS history.May's last night in hospital. One of the least profitable moments in NHS history.

The Coalition government is at it again. They are pulling the rug out from under the Disability Living Allowance. Ripping the Mobility element from many needy people. Making disabled families who are also very poor, poorer. If that wasn’t enough to make a person want to charge Downing Street and literally disable David Cameron, now […]

This week I’m… singing scales.

February 18, 2012 at 23:44

Mama Lewis

2

My biggest fans. And yes, my voice merits this level of adoration.My biggest fans. And yes, my voice merits this level of adoration.

My biggest fans. And yes, my voice merits this level of adoration. Just call me Julie Andrews. I’m no one trick pony. I’m a triple threat; I can sing, dance AND act. Okay. I can hum a tune, drunk dance AND act nasty – but only if you park in a disabled spot and you […]

Recognition for hardship or marketing ploy?

February 16, 2012 at 23:57

Mama Lewis

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Ieuan, Aunt Carrie and May

Mama Lewis and the Amazing Adventures of the Half-Brained Baby has been nominated, again, for the Circle of Moms Top 25 Moms with Inspirational Families award. Um. Thanks.¬†It’s kind of like being nominated for “Who has the saddest life?” Cancer.¬†Autism. Genetic abnormalities. The nominees form a long list of children born without and their parents […]

How does special needs potty training work?

February 9, 2012 at 04:40

Mama Lewis

13

May, during this, our toilet training week!

I admit it. My mom worked some kind of voodoo magic over my daughter. Because, it’s not just my mom anymore. I am now 3 for 3 with my daughter on the potty. Now, I only tried once today and twice yesterday, but each time, within 30 seconds, there it was. Pee-pee in the potty. […]