Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 14, 2009 // 36 Comments
- November 25, 2011 // 35 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- November 29, 2013 // 0 Comments
- November 25, 2013 // 3 Comments
- November 7, 2013 // 4 Comments
- October 23, 2013 // 12 Comments
- October 9, 2013 // 11 Comments
- By Katie B., November 26, 2013
- By Ellen Lewis, November 26, 2013
- By Madgew, November 26, 2013
- By tee, November 11, 2013
- By Alexa, November 8, 2013
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
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Can May be potty trained?
Apologies for using the language of potty training. We are in America where there is no escape from cute terminology when it comes to pee, poo and dimpled baby butts. Or, maybe it isn’t America. Maybe it is a universal truth that a child can not be toilet trained without adorable songs that rhyme “poo” with “you”.
My mother’s training regime is simple: upon waking or finishing a meal, sit May on the toilet.
No matter how dedicated and determined my mother may be, I have my doubts May can be toilet trained. There is dreaming and there is realism. I lean uncomfortably towards realism; my mom is a dreamer – be it a dreamer who has proved me wrong on more than one occasion.
Hell – I’m happy to be wrong on this occasion as well.
So, what’s working against May?
- Cognitively she has to understand that she pees and poos.
- She must identify the toilet. She must see it and recognize it for its role.
- She has communicate when she needs to go.
There are all kinds of physical skills as well: sitting independently, balancing on the edge of a seat, wiping her butt, etc. I would imagine there is special, assistive seating available. Wiping? I think that will remain my department. I can’t imagine her ever gaining the skills to wipe. It involves reaching awkwardly and wiping an area based on touch and body awareness alone. There is no way. It’s a truth as simple as my mother’s potty training.
I just don’t believe. I don’t believe I’ll ever stop wiping. I don’t believe I’ll ever stop any of it.
What I do believe is that I need more time coming to terms with May’s limitations.
Do you think May will master the toilet? And, if you do, why?
We are now 5 for 5. Mom wanted to try May on the toilet tonight to show me and low and behold, she did it! It was adorable. My daughter was on the toilet, tinkling some pee-pee, and I loved it. I still have my doubts – they are considerable – but, they are also weakened now.