Posts made in March, 2012

Bet you didn’t know this either.

Posted on Mar 27, 2012 | 4 comments

Something slipped my mind this week. Or, maybe I should say it never registered at all. Sunday was National Cerebral Palsy Awareness Day. Yeah, I didn’t know either. I only mention it because it coincided with a couple of pretty horrific news stories. Not exactly cause for celebration. In the first, LaKay Roberts’ mother is told by her elementary school that LaKay is forbidden to use her walker any more. You read that right. Forbidden. The mother videotaped the conversation – and it is edited, and there is definitely some animosity there between her and Special Education...

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Mama Lewis v The So-Called Social Services

Posted on Mar 20, 2012 | 5 comments

Two weeks ago, I had an uncomfortable conversation with a Social Services Occupational Therapist (SSOT). It disturbed me enough to request he not meet me at in my home, which he was meant to review for his records, but at May’s school where her community OT and physio could join us. I’m grateful to them for their support and professionalism, as well as, their familiarity with May, both her needs and preferences. Their confidence meant I could relax and focus on the chair. After all, lost in all the wranglings from our last conversation was whether the chair we were viewing that...

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From the archives… speaking baby talk (VIDEO)

Posted on Mar 16, 2012 | 2 comments

Two nights ago, I received an email from a parent who feels pretty desperate. It was like time traveling back into my thoughts two years ago. I can’t get her out of my mind – how lonely and sad she is. I was like that once too, and though I am not today, I still fall into that miserable cage of “what-ifs” sometimes. So, let’s look back (and forward) to happier times. This post from the Mama Lewis archives is in keeping with our music post this week – from back when May had just started anticipating sounds. Here she is our baby Ieuan’s age, eight...

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How to NOT get hired to work for May

Posted on Mar 15, 2012 | 7 comments

How to NOT get hired to work for May

I’ve advertised for a care assistant for May. I have one person, who May loves, a part-timer from her nursery. But, now that our respite money is finally in our account, only five months after the government was meant to deposit it – and three months after we hired the part-timer – we need another. You may think five months is a long time to pay up, but that is nothing! Lambeth Council contacted me this week by email instructing me that our disabled parking spot, which we applied for shortly after May’s birthday last April, will be delayed again, until June....

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Six months ago May started music therapy. Has it worked?

Posted on Mar 12, 2012 | 12 comments

Six months ago May started music therapy. Has it worked?

When May began music therapy sessions run by Nordoff-Robbins, six months ago, my plans were ambitious. I am one driven mama and May is my toddler in a tiara (minus the tiara). My goal? May would have fun, or we would stop. (Don’t you wish all corporate meetings opened with that as Item 1 on the agenda?) May loves music. If all she did was enjoy herself, it would have been a success to me. However, it doesn’t take a genius to know that things that bring us pleasure are great motivators. Back then, I made a wish list of outcomes I hoped music therapy would result in, that included:...

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