Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 14, 2009 // 36 Comments
- November 25, 2011 // 35 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- November 29, 2013 // 0 Comments
- November 25, 2013 // 4 Comments
- November 7, 2013 // 4 Comments
- October 23, 2013 // 12 Comments
- October 9, 2013 // 11 Comments
- By Kristen, December 6, 2013
- By Katie B., November 26, 2013
- By Ellen Lewis, November 26, 2013
- By Madgew, November 26, 2013
- By tee, November 11, 2013
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
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Happy Birthday May! You are THREE!
Six-months ago, when I wrote my bi-annual birthday review of May, I really despaired. I didn’t say so in the post – these birthday posts are times to reflect on progress and celebrate May’s happiness. But, her list of achievements was not all that distinguishable from the six-months previous. When I composed it, I panicked. Was May’s progress petering off? Would she still progress and develop in a healthy way?
Six-months ago, just as I was writing that post, May was about to have a stimulation immersion. This after my very troubling discovery that May had been in receipt of very little therapeutic stimulation for some time.
So, it was about six-months ago that all this began:
- one hour private physio every week
- a half hour music therapy every week
- finally saw her OT again after languishing on the waiting list for months
- acquired a standing frame in school and at home
- started at her special school in January (morning sessions)
- moved to a new room at nursery (afternoon sessions) so received a lot of attention and mixed with children of her own age
Where previously we had only the added input of the Small Steps School team (and, where would May have been if I hadn’t received their support and guidance?), now she has stimulation coming from every direction.
Did her stimulation immersion help her progress? Did it made a difference?
In keeping with previous birthday posts, let the celebrations begin!
May, when you were born, here is what the doctors definitely knew you would be able to do:
At three years old you can:
- sleep through the night! (WOOHOO!)
- relax your muscles, particularly your hands
- move in far more natural way (less jerky and tense movements)
- move your arms and legs independently of one another
- twist your torso from side to side
- go pee-pee on the potty (if brought to it at specific times and held there by mama)
- recognize (by laughing hysterically) when a light changes color and look in its direction
- sleep through the night (Double WOOHOO!)
- make sipping movements with your mouth when I ask, “Do you want water?”
- eat three full meals a day (that’s major – May often couldn’t finish meals)
- be unbelievably happy almost all the time for several months straight
- fully appreciate our new home entertainment system that is Baby Ieuan
- sorry, did I mention SLEEP THROUGH THE NIGHT???
Given enough time, I probably could have come up with ten more things. Happy Birthday to May, my amazing half-brained baby genius! Who knows what incredible feats your third year will bring…