Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: email@example.com
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- April 23, 2014 // 0 Comments
- April 22, 2014 // 0 Comments
- April 18, 2014 // 4 Comments
- April 16, 2014 // 3 Comments
- April 15, 2014 // 3 Comments
- By Mama Lewis, April 22, 2014
- By Ellen S., April 21, 2014
- By Mama Lewis, April 19, 2014
- By Scott, April 19, 2014
- By Mama Lewis, April 17, 2014
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Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
May vs The Hosptial, Part 2: The waiting game
A year ago, this week, a solicitor visited us to hear our version of the events leading to May’s brain damage. It was harrowing saying aloud all the moments that continue to torment me. All the more trying because I know it will, most likely, all be for naught.
The process is long partially, I think, to put people off doing it. A year on and no further progress? Having to ask and then reask and then ask again when the hospital doesn’t provide all the documentation they should? These are not fun conversations, especially when you know that proving anything will be near impossible even if you get the documentation.
Still, two weeks ago, I asked for an update. And, not unexpectedly, there is no update. The experts are still examining the documentation of which there are hundreds, possibly over a thousand, sheets of paper.
And yet, strangely, I still have hope that they will uncover something.
I walked past a house today, on the way to pick up May from nursery. It had been renovated so that a disabled person could live in it. A modest house, with a ramp leading to wide front doors. Along the sides of the ramp, were new planted flowers. I sighed. How wonderful it would be to know that May’s future was secure and that we had the means to make a house like this, her home for life.
The waiting game continues.