Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 10, 2014 // 3 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- By Madgew, March 10, 2014
- By Mama Lewis, March 10, 2014
- By C Smith, March 10, 2014
- By Susan Bell, March 10, 2014
- By Mama Lewis, March 6, 2014
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Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
I kicked a doctor off May’s team
In an interesting follow-up to yesterday’s post, here is the email I sent to May’s team this week following her annual medical review on Wednesday:
Thank you for meeting with May and I on Wednesday (and a very noisy Ieuan).
Thank you, ** for drawing up the care plan. It seems fine to me. I need to make a somewhat awkward request, that I hope you won’t find too uncomfortable to read. I was very uneasy with Dr. **’s professionalism yesterday. I realise her involvement with May is very limited, but I want to formally request that she does not deal with May’s medical issues from this stage forward.Before our meeting, she met me in the car park to see what was holding me up and I explained May had just had a seizure. Of this she did not comment; she did make a point, however, of rushing me along. [Tapping her watch, remarking on her many appointments, insisting I push May on the sidewalk instead of the cobblestone drive that May loves.]* Then, when I stopped again because I thought May was having another seizure, she told me [without investigating] May wasn’t having a seizure, she was just cold and I should hurry up and get her inside.
I told her it was far more important to check that May wasn’t having a seizure than to just assume she was cold. I should never have to tell a doctor this.
Then, in our meeting, I felt she was dismissive of the team’s advice. [For reflux:] she wanted to investigate putting May on muscle relaxants and pain killers before we’d tried basics like antacids. She also wanted to refer May to a dietician before we’d even checked her weight. [Of which, we discovered afterwards she is gaining.]May’s medical needs are very difficult to diagnose. I am concerned about having someone involved with her care who is quick to judgement and brushes aside your expertise.
May I respectfully decline her services in the future?
I would like to reiterate that I felt our joint discussions in the meeting were useful and I agreed with the conclusions. I hope you don’t see this as a reflection on the team as a whole.