Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
WANT MAIL FROM MAMA?
May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 10, 2014 // 3 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- By Madgew, March 10, 2014
- By Mama Lewis, March 10, 2014
- By C Smith, March 10, 2014
- By Susan Bell, March 10, 2014
- By Mama Lewis, March 6, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
I kicked a doctor off May’s team, Part III: You won’t believe this
Two things, completely unbelievable, happened this week:
1) I got a ticket for parking in my own disabled parking spot in front of my house.
My disabled badge had fallen off my dash on to the floor of the car. The other part of the badge, which is a card that has a handicapped symbol on it and a time clock to show when we parked, remained on the dash. So, basically, some uptight parking attendant decided to teach me a lesson in placing the full badge on the dash.
There is no one I have more respect for than someone who knows a person is disabled and goes out of their way to make their life far more expensive for no reason.
2) I received a phone call from the supervisor of the doctor I kicked off May’s team. She told me that after interviewing everyone at the meeting, they had unanimously agreed that the doctor had handled various things inappropriately – including the doctor herself. Including her! I was told I will receive a letter of apology in the post from the doctor who would apologize in it unreservedly.
Then, if that wasn’t strange enough – her supervisor apologized to me too. She explained that this is not how she wanted the service to be run, that she wants to work closely with parents. Parents are – after all – the experts, she said. Which is a phrase I have heard countless times, but never in such circumstances.
I told her that I felt reassured by their response. Not that I want May to see this doctor again, but I will need to use the service; if they had not taken it seriously, I would have questioned their team from that point forward.
I’d say I’m speechless, on both counts – but of course I’m not, since I just wrote 300 words on it.