Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- April 16, 2014 // 2 Comments
- April 15, 2014 // 2 Comments
- April 7, 2014 // 5 Comments
- March 31, 2014 // 3 Comments
- March 30, 2014 // 2 Comments
- By Irishmama7, April 17, 2014
- By Madgew, April 17, 2014
- By Aunt Carrie, April 16, 2014
- By Ellen Lewis, April 16, 2014
- By Mama Lewis, April 8, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
As if May’s brain injury isn’t enough…
It’s better if I just say it, like that, than draw it out because I can not bear it.
I can’t bear the injustice of it all. That May would already be born so severely disabled, and now she must be subjected to major surgery before she is even four years old. She will spend five days in the hospital. Three months without bouncing.
I can’t help but return to this idea that I could have done something to prevent it. My husband tells me this is not true – that once she was born, and born as she was, this problem was as inevitable as any other issue she has.
I can give May every ounce of love within me. But, it isn’t enough and that is a terrible.
And, I fear now for my faith in anything to work. Because when you set your sights on May not needing surgery as a goal – as opposed to something grand and simple like sitting unaided – the goal already seems rather low. Now, it is insurmountable.
So, what of the other things, the bigger things, like sitting?
It is weeks now since her hospital appointment. Weeks until I could write this. Instead, I have kept as busy as possible. There are moments though, where I find myself alone and unguarded – small moments waiting for the kettle to boil, or the light to change at the crossing – when I am not talking or writing, or teaching or caring for the kids; I find my mind whirls to all those hours that I did nothing. That I sat and watched television. Or, I ate a snack. Or, I slept in.
I wish I could gather them up, like time banked in a savings account, and use them to set May’s hips right.