Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: email@example.com
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 10, 2014 // 2 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- By Mama Lewis, March 10, 2014
- By C Smith, March 10, 2014
- By Susan Bell, March 10, 2014
- By Mama Lewis, March 6, 2014
- By Zvon, March 6, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
What should I ask the hospital regarding May’s surgery?
Tomorrow, I have a hospital preparation appointment to establish that May is well enough to go on the waiting list for hip surgery. At the meeting, I can ask questions and – since I was blindsided at the last meeting – I now have about 1,000 questions I want to ask, ranging from How will May survive the surgery? all the way to How will I survive a week living the hospital without Wi-Fi?
I’m not sure what is relevant to ask at this point. I imagine there are probably people reading this though who have had hip surgery themselves, or a child who has had major surgery, or perhaps are a doctor – any number of people read this blog who might have a good idea of the kind of questions I should be asking at this point.
May is a little girl; she is only 3 1/3. Her cognitive abilities are very low. Her physical abilities are very low. How will surgery change that? I don’t know. For good – one hopes. But, perhaps for bad as well and I want to do everything I can to avoid that.
What should I ask tomorrow regarding May’s surgery?
*** UPDATE ***
Thank you very much to everyone who gave me ideas to take in with me today. I felt far more informed. It was like a revision session with an exemplary study partner! If I received an answer that relates to your comment I will endeavor to put something below as a reply.