Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 14, 2009 // 36 Comments
- November 25, 2011 // 35 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- November 29, 2013 // 0 Comments
- November 25, 2013 // 3 Comments
- November 7, 2013 // 4 Comments
- October 23, 2013 // 12 Comments
- October 9, 2013 // 11 Comments
- By Katie B., November 26, 2013
- By Ellen Lewis, November 26, 2013
- By Madgew, November 26, 2013
- By tee, November 11, 2013
- By Alexa, November 8, 2013
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
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Mama called the doctor and the doctor said…
You know that children’s song about the monkeys?
10 little monkeys jumping on a bed
1 fell off and broke his head
Mama called the doctor and the doctor said
NO MORE MONKEYS JUMPING ON THE BED!
9 little monkeys jumping on the bed…
It’s one of my kids’ favorities. As is anything that involves a lot of bouncing, singing and shouting.
This mama called a doctor as well this week, in for a meeting in her hospital room – that’s where I am right now, the hospital. It’s my second round of chemo and I just completed my last dose of it this morning! To those still taking notes that is:
Lewis 2 Leukemia 0
Amazing news came out of Mama calling the doctor, this time a message passed on from the Anthony Nolan Trust. They are a charity that find and test transplant applicants.
And they found me a bone marrow donor! We can not believe our good luck. Personally, after my sister wasn’t a match, I was concerned it would not happen at all.
My bone marrow transplant will happen at the end of next month, accompanied by a 4-6 week stay in the hospital. And then, hopefully, Leukemia’s ass will most certainly be grass.
* * * * *
If you want to donate your bone marrow for transplant but have watched one too many Hollywood movies that put you off – fear not! It is (almost) completely pain free.
To be tested, all you need to do is spit in a cup. That’s it. If you are a match for someone they will do further blood tests and, if successful, they will take the blood out of a vein in your arm to give to the patient in need.
They will never touch your bone marrow. It’s that easy.
Fill out an online form here and the Anthony Nolan Trust will send you their spit kit.