Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: firstname.lastname@example.org
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 10, 2014 // 3 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- By Madgew, March 10, 2014
- By Mama Lewis, March 10, 2014
- By C Smith, March 10, 2014
- By Susan Bell, March 10, 2014
- By Mama Lewis, March 6, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
My two-year old knows something’s wrong with May
A few mornings ago, my husband was taking a shower and so didn’t hear May have a seizure. She cries in a thin and tremulous voice, and it is filled with terror. She still has at least one seizure like this a day, which is much better than it used to be.
My husband was letting me sleep in, so I didn’t hear it either. Very softly, there was a knock at my door. “Mama?” a little voice said. “May-May’s crying.” I rushed out and held her in time to comfort her.
Later that morning, Ieuan made himself shake. Just like May, his arms went rigid and his fingers wide. He made a crying, tremulous sound. He stopped, then started again. “You don’t need to do that, honey,” I said gathering him to me. “You are fine. May gets upset like that, but you don’t have to.”
Ieuan knows something is wrong with May. He wants to comfort her. He brings her toys, her bottle and other things he knows she likes – but May can’t hold them or use them without assistance. The other day I found him in the living room feeding her a bottle as she sat in her chair.
I find this both sweet and unsettling. He is old enough to know something is up, but not old enough to make sense of it. That will come though. We will walk a fine line throughout his childhood of allowing him to care about her and not asking him to take care of her. I used to think I wouldn’t have him help at all, to preserve his childhood. But he loves May, and I don’t think he can help but want to take part.