5 for Friday: Special Needs Round Up

Posted on Apr 25, 2014 | 1 comment

It’s our second week covering special needs blogs. Hooray! Our first anniversary. I’d like to thank my family, friends, the academy… erm, okay I’ll get to it.

1. Renata from Just Bring the Chocolate has had enough. Why does everything about children with special needs have to be awful?

Along with her family, and a load of other families, she created an awareness video for Undiagnosed Children’s Day (which happens to be today) that is entirely fun. My son even stopped watching Thomas the Tank Engine to see what was so interesting. Now that is major. And here it is:

2. Shasta over at Outrageous Fortune wrote a beautiful post about the complex feelings of having twins (one with cerebral palsy and one without). Also, don’t you think this photo of her two boys with her at the Science Museum is inspired when considering the balancing act she tries to achieve with them?

3.  In her post Dear You, what a year… Kate Leong expresses her gratitude towards readers one year after her son passed away. She describes the resulting tidal wave of support for Gavin’s Trust Project, founded in his name. She writes, “The tagline of my blog has been ‘A Mommy’s Quest to Make the Impossible, Possible… and the Unexpected Miracles Along the Way.’ There are always unexpected miracles… even if they are born out of a tragedy.” 

4. Were you as troubled as I was by the coverage of the mother who killed her three disabled children in South London this week because she “struggled” to look after her children despite her £2-million house? (And really, is it important how many bedroom she had?) A welcome perspective here from BBC’s Ouch from people with SMA (spinal muscular atrophy) and parents. Toby Mildon, a 31-year-old project manager at the BBC, who has type 2 SMA wrote: “If you know a mum with an SMA baby, tell them to stay away from the fatalistic information on the web and sometimes given by medical people! They need to see lived experience and turn to people like me, my friends and our parents.”

5. Finally, a small “everyday” thought from Lisa Leonard at her blog:

After I changed my third poopy diaper that day, I turned to my husband and said, “I’ll always change diapers. I will never NOT change diapers.” Our oldest son David has a disability and will likely be diapered his entire life. At the end of a long day, I felt defeated. I felt done. I felt empty.

Then my husband asked me, “What if changing diapers is the most important thing you do all day?

What if it is?

Know a special needs blog post you feel needs highlight? Add it to the comments below or email me: contact.stacie@gmail.com.

One Comment

  1. You’re children are beautiful. There’s alway’s hope just live in health and Joy. You’re family is one of the most important aspect of your life .

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