Three years ago, I signed us up for an accessible house on the housing register. Last week, we received the keys for our new home!
I raced my 4-year old, Ieuan, in the house and up the stairs. The one flight of stairs. One flight -- not four -- with step-free access so we can wheel May from her school bus right into our kitchen.
No more carrying six-years old May up four flights of stairs! No more exhaustion for me while I recover from cancer and struggle to carry in the groceries! No more! No how! No way Posé! (That's Ieuan's latest turn of phrase.)
We have started the application process for a lift for May to the upstairs and her bedroom. It will take a bit of time for everything to go through and I know it isn't a perfect situation, but bear in mind our current flat has FOUR FLIGHTS OF STAIRS.
Did I mention the four flights of stairs?
In honour of this wonderful event, we are giving away for FREE a load of barely used special needs equipment. All you need to do is share this post (we really need to
spread the word get rid of it quick before we move), contact me and tell me which one(s) you want. You can pick it up (South-East London) or courier it over. Easy-peasy.
Click through to see items. Specifically, check out the Simple Stuff Works sleep system. These sleep systems are very expensive and really vital for 24-hour positioning. Unfortunately, May can't use it because she has involuntary, thrusting movements while sleeping. But, it could work for you and she barely used it.
Also, the vibrating snake which you should get for the amusement of the box alone. It is very therapeutic to the woman advertising it. (Incidentally, May has two of these, one of which we are keeping because she enjoys the vibrations.)
Finally, let it be said that this wasn't won without a fight and yes, that depresses me. It does. Because there is no way a family like ours, facing what we have faced for the past several years should be arguing about whether leukaemia is a life-threatening disease with the housing board.
We live in a world where politicians and the media define the needy as deserving or not. That division creates a fantasy world where people believe the majority of folks are gaming the system. So, let it be said that we aren't the only family who are "deserving" -- I'm just the loudest. That's not reasonable or just. I can only hope that the publicity generated by our story means that people have a more realistic idea of just how hard it is to be assigned an accessible, council house.
Finally, here are a couple photos. I know you are curious...
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