A bit of praise

My husband is literally giving the shirt off his back

Posted on Jul 31, 2014 | 0 comments

My husband is literally giving the shirt off his back

…and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. It’s my last day of the first round of my new chemotherapy – one week on, three weeks off. To say I’m thrilled to see the back of this place for a few weeks is an understatement. The chemotherapy day unit is one of the most depressing holes I’ve had the pleasure of being made to wait three hours for a five minute treatment in. Or, spa treatment as I insist my doctor calls it. Which she does. Why not...

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The report is clear: disabled children’s rights are being compromised

Posted on Jul 13, 2014 | 3 comments

The report is clear: disabled children’s rights are being compromised

This week, I attended the launch of the Parliamentary report into childcare for disabled children. Chaired by MPs Robert Buckland and Pat Glass, it took into consideration extensive research by Contact a Family and the personal evidence of parents, local councils and education providers. The report is stark reading. The statistics are truly awful. Children are being denied a right to an education and play, and this goes against the UN Convention on the Rights of Children, not to mention our own British laws. In short, it is illegal. On the night, I was asked to speak again. I pointed out the...

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They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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5 for Friday: Special Needs Round-Up

Posted on Apr 18, 2014 | 4 comments

5 for Friday: Special Needs Round-Up

Welcome to the inaugural edition of 5 for Friday – the Mama Lewis Special Needs Round-Up. For the next month, I’ll trial this round-up of highlights from special needs blogs. If it proves popular, I will continue and if not then I’ll proceed as I have been (posting endlessly about May’s superior power of cuteness). Email contact.stacie@gmail.com with suggestions for next week! 1. It’s Easter Weekend so head to It’s Fun for All at Jonathan’s Bookshelf for some accessible Easter activities. Once you are done reading about their fun fishing game be sure...

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Shopping with a disabled trolley – first look pics!

Posted on Mar 12, 2014 | 17 comments

Shopping with a disabled trolley – first look pics!

What happens when you combine one cutie in a wheelchair + one wonky shopping trolley + one wonky mama pushing it all?  Listen to the repeat at You & Yours, BBC Radio 4. Then use the hashtag #YouAndYours to let us know what you think. And here’s what happened next… May just wants to shop. And Sainsbury’s heard her cries. We tested out the Firefly ‘GoTo Shop’ trolley and it is awesome. The trolley provides a five-point harness to secure children who are challenged by tone, balance and sitting. It also has a fifth wheel underneath to stop those dangerous...

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