Dealing with Doctors

Goodbye 2013…

Posted on Dec 28, 2013 | 12 comments

Goodbye 2013…

Congratulations to May and I ! This is our 400th post on Mama Lewis. Thanks for reading and happy holidays! To say I’m done with 2013 is an understatement. If someone offered me a lobotomy tomorrow and said, “We can remove 2013, but we’d have to remove everything, not just from about April when May’s hips began to really trouble her. You’d have to erase everything. May’s birthday at Kew Gardens. Your fun day at the London Zoo. Everything.” I’d say, “How soon can you cut me open?” Many people like to look at the positive side to...

Read More

It’s official: I’m in remission!

Posted on Aug 5, 2013 | 17 comments

It’s official: I’m in remission!

The haematology department kept us waiting three hours today before I was called in for my meeting. And it was a big meeting: the official results of my biopsy after my chemotherapy treatment. Sure, last week the news was good. But I was still nervous and after three hours, I was near breakdown by the time my name was hollered out. The first thing I said when I sat down for the meeting – after we demanded to know why we’d been held up – was, “I don’t think I can have this meeting. I’m so wound up.” “But, the results were very good. You are in...

Read More

Why I’m grateful for socialized medicine

Posted on Jun 13, 2013 | 7 comments

Why I’m grateful for socialized medicine

Praise here to all parents who lovingly pack a bag for their child, knowing they will be cut open the following day. As an emotional experience, May’s surgery was a complete disaster. There is no getting around that. When we entered the recovery room post-surgery, a child was rasping with the force of his own screams. It wasn’t a boy, it was my daughter. I didn’t recognize her. But, it was also a major success. Performed by a surgeon whose specialism was not just orthopedic surgery, but orthopedic pediatric neurodisability surgery – a week later my daughter is already kicking her legs...

Read More

How is May post-op?

Posted on Jun 5, 2013 | 13 comments

How is May post-op?

I posted a photo of May on Facebook last night, and then took it down. Something about May in a hospital bed slowly working its way down a popular newsfeed made me feel sick. Instead, here is a photo for you, where it can be followed by a lengthy paragraph of gratitude which feels far more appropriate. If anything, this experience has reinforced my view that May is loved by so many people – more than just her family. We have received more messages than I can respond to personally. But to highlight her family for just a moment – what I feel for my mother (AKA Grandma Bar) and...

Read More

What do you think of our theory about May’s pain?

Posted on May 11, 2013 | 7 comments

What do you think of our theory about May’s pain?

May started giggling last night. A frothy, snorting childish giggle that bore no resemblance to the screams of late. It was wonderful. But, May’s troubles were not over. My husband and I escaped for a few hours today, but only down the road to a coffee shop. I wasn’t there long before May’s careworker phoned. “She’s having seizures,” she said anxiously, “and they don’t stop. They last 45 seconds and then stop and start up again.” I raced home. It wasn’t seizures – to which our careworker apologised over and over again but,...

Read More