Hot Air

It could have easily been me. My life rationed away.

Posted on Dec 9, 2015 | 3 comments

It could have easily been me. My life rationed away.

I read a deeply disturbing article last night. I should have been asleep, but instead I scrolled through The Guardian’s web site and accidentally landed on a story that resonated all too closely to my own life. “A 22-year-old woman with relapsed acute myeloid leukaemia died after being denied a second allogeneic stem cell transplant,” the article in The Guardian on NHS rationing read. “Her doctor said her late relapse and good response to salvage chemotherapy meant there was a 50% chance that a further transplant would have cured the disease. However, the local GP-led...

Read More

Someone, please tell me what to do now?

Posted on May 11, 2015 | 4 comments

Someone, please tell me what to do now?

Last Thursday, my husband and I skipped off to the polling station with my downstairs neighbours and our children. They played tag between the voting booths and we shushed them and giggled at the same time, delighted to be there and to vote. For weeks leading up the event, I’d been obsessed. I hadn’t just been reading articles in the Guardian, my usual read – but also my political opposites, the Telegraph and even sometimes even the Daily Mail. I wanted to know all sides. And, I hadn’t just read. I was writing myself. My post on the shocking truth behind Samantha...

Read More

24 hours left to register. Don’t think your vote will count? Think again.

Posted on Apr 19, 2015 | 0 comments

24 hours left to register. Don’t think your vote will count? Think again.

There are only 24 hours left to register in Britain to vote in the General Election. Don’t think your vote will count? Think again. As Tania Tirraoro of Special Needs Jungle points out there are 12 million votes out there, ready to be cast, if disabled people register and vote. According to BBC Ouch, that’s 20% of the voting age population. Tania, who is both a parent to a child with special needs and disabled herself, says: “It’s not just my own health condition that depresses me. Looking up from my own self-pity brings me face to face with the way the Coalition...

Read More

Why the Tory “right to buy” plan is just wrong

Posted on Apr 15, 2015 | 4 comments

Why the Tory “right to buy” plan is just wrong

I’ve been conversing with a mum this week. A mum like me, who is also desperate for a home that doesn’t endanger her severely disabled daughter with every step she carries her down a staircase. I read about her plight earlier in the week. Leanne Mhamdi lives in Grangetown with her husband, son and daughter, Nicole. Nicole has epilepsy. Like my daughter, May, she also has profound learning difficulties and cerebral palsy. She is tube-fed and relies on their care 24 hours a day. The day after I read her story – the Tory party announced with great fanfare their new flagship...

Read More

The shocking truth about Samantha Cameron’s interview

Posted on Apr 6, 2015 | 96 comments

The shocking truth about Samantha Cameron’s interview

Samantha Cameron has given her first interview in years and “finally” revealed all to the Mail on Sunday about how she felt when her disabled son, Ivan, died.    

Read More