Hot Air

I keep watching these videos and they make me cry

Posted on Jul 16, 2016 | 1 comment

I keep watching these videos and they make me cry

Either I am really hormonal or there is something genuinely wrong with how people view disability. Or both. Maybe it’s both. I keep watching videos in my Facebook feed about people with disabilities being accepted — not being accepted despite their disabilities but because of their normal “I am actually a human being just like you” qualities. (Because, you know what? They are actually human beings… Yes, I know! It’s crazy isn’t it? They love and cry and want friends and eat ice cream when they are supposed to eat apples, just like you.) The first one...

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Disability, abortion and “that woman” Katie Price

Posted on Mar 4, 2016 | 4 comments

Disability, abortion and “that woman” Katie Price

Glamour model Katie Price has done it again. And by again, I mean risen again in my estimations. I only call her a glamour model because that is what she is known for. But, for me, she is at the forefront of the most honest, heartfelt and real conversations we have about disabled children. This week she was in the news again in reference to a remark she made on national television about how, if she’d known about her son’s disabilities, she probably would have aborted him. I wrote about it in the Guardian: The context – that she didn’t know anything about raising a disabled child...

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It could have easily been me. My life rationed away.

Posted on Dec 9, 2015 | 3 comments

It could have easily been me. My life rationed away.

I read a deeply disturbing article last night. I should have been asleep, but instead I scrolled through The Guardian’s web site and accidentally landed on a story that resonated all too closely to my own life. “A 22-year-old woman with relapsed acute myeloid leukaemia died after being denied a second allogeneic stem cell transplant,” the article in The Guardian on NHS rationing read. “Her doctor said her late relapse and good response to salvage chemotherapy meant there was a 50% chance that a further transplant would have cured the disease. However, the local GP-led...

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Someone, please tell me what to do now?

Posted on May 11, 2015 | 4 comments

Someone, please tell me what to do now?

Last Thursday, my husband and I skipped off to the polling station with my downstairs neighbours and our children. They played tag between the voting booths and we shushed them and giggled at the same time, delighted to be there and to vote. For weeks leading up the event, I’d been obsessed. I hadn’t just been reading articles in the Guardian, my usual read – but also my political opposites, the Telegraph and even sometimes even the Daily Mail. I wanted to know all sides. And, I hadn’t just read. I was writing myself. My post on the shocking truth behind Samantha...

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24 hours left to register. Don’t think your vote will count? Think again.

Posted on Apr 19, 2015 | 0 comments

24 hours left to register. Don’t think your vote will count? Think again.

There are only 24 hours left to register in Britain to vote in the General Election. Don’t think your vote will count? Think again. As Tania Tirraoro of Special Needs Jungle points out there are 12 million votes out there, ready to be cast, if disabled people register and vote. According to BBC Ouch, that’s 20% of the voting age population. Tania, who is both a parent to a child with special needs and disabled herself, says: “It’s not just my own health condition that depresses me. Looking up from my own self-pity brings me face to face with the way the Coalition...

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