Hot Air

Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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This is the most disgusting thing you will read today

Posted on Jul 1, 2014 | 23 comments

This is the most disgusting thing you will read today

May is five years old now. She no longer fits on those baby changing tables, and she is only getting bigger. If you leave your home for more than an hour, chances are you might need to use the toilet. May does too. When we go out and she needs to be changed, we have no choice but to place her on the floor of a toilet. We wouldn’t put a baby on the floor of a toilet. What a revolting thought. We wouldn’t choose to lie about ourselves on the floors of toilets. Or, allow our toddler to eat a bit of food he drops there. But, there seems to be very little drive to provide sanitary...

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They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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Retrieved from the post office today…

Posted on May 1, 2014 | 0 comments

Retrieved from the post office today…

Retrieved from the post office today: one package too large for the slot in my door addressed to May. A late birthday gift? No. Six nappies. May turned five a week ago. That is one year since she was eligible for free nappies (AKA diapers for my American friends). A year of nappies we have purchased for May, at our expense – and in return, SIX. Children in the UK who cannot be potty trained receive free nappies on the NHS once they turn four. And so, I find myself with six nappies. For the past year, I’ve been begging for… six nappies. I should add the package, which I...

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Where is the shock and anger?

Posted on Apr 27, 2014 | 13 comments

Where is the shock and anger?

I’m the mother to May, a severely disabled little girl, and I’m opening today’s post with a controversial statement: Your prayers are not enough. Thank you for praying for us. And for the 800,000 other families in the UK who are raising a child with disabilities.* It’s not that we don’t appreciate all the goodwill sent our way. But what about a prayer combined with a lasagne? We could really use a lasagne. Or a few hours off on a Saturday so we could do our shopping. Or for you to sign a petition calling for the end of welfare cuts. Or for more shopping malls to...

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