Hot Air

The video that changed everything

Posted on Mar 12, 2015 | 7 comments

The video that changed everything

Last week, ITV filmed May and I in our housing showing the reality of disabled housing. As we filmed, the reality of our lives wasn’t just highlighted in the piece, but starkly apparent to me. Only an hour later – before it even aired – we received our first contact from Lambeth council. I had to carry May up the stairs; we have four flights at various points in the house, inside and out. In the clip below, you can hear me puffing as I heave her up those stairs. They asked me hard questions, emotional questions that cut to the heart of what our lives are like. Not all of it...

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This is what being disabled and on the housing register looks like

Posted on Mar 1, 2015 | 23 comments

This is what being disabled and on the housing register looks like

A mother with leukaemia. A five-year old daughter so disabled she can’t even throw an arm around the shoulders of someone carrying her up the stairs to her flat. Over two years on the housing register and no chance of even being shortlisted for a property. This is the reality of being disabled and living in housing completely inadequate for your needs.

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Let’s play the “What we wish therapists would say” game

Posted on Feb 23, 2015 | 1 comment

Let’s play the “What we wish therapists would say” game

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make me want to take a sharp implement to their face. In this world, so-called experts say things like: 1. I won’t tell you again that you can’t live in your own home because of May. Until I find you the perfect home, I will not frighten you...

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This is not a joke.

Posted on Feb 15, 2015 | 0 comments

This is not a joke.

A photo to illustrate the lunacy we are up against. This family spent two years campaigning for access to their own home. “We weren’t fighting for a massive steel ramp – we just wanted to improve Katie’s quality of life,” her mother said. Mother’s anger after council install ‘slalom’ ramp for disabled daughter in front garden http://t.co/TI0w9kt0f8 pic.twitter.com/IAVRsnfL71 — Telegraph News (@TelegraphNews) February 13, 2014   What’s the craziest thing you know of that a council has done to “help” a disabled...

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We did it! Government changes childcare policy in favour of disabled children

Posted on Feb 9, 2015 | 0 comments

We did it! Government changes childcare policy in favour of disabled children

This just in! Contact a Family, the charity who drew up the report into childcare issues for disabled children and pressed for a Parliamentary inquiry, emailed today with the new draft legislation regarding childcare costs. Families with disabled children will now be allowed to put double the amount aside tax-free as other families. This will mean a gain of £2,000/year towards childcare costs. “Representations were made during consultation that additional support should be provided for disabled children in view of the generally higher childcare costs their parents can face. Similar comments...

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