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Category Archives: Ieuan

Will this product revolutionize seating for disabled kids?

February 3, 2014 at 08:35

Mama Lewis

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Five point harness and high, cushioned seat that supports May's head.Five point harness and high, cushioned seat that supports May's head.

When I was a toddler, I sat in a red rocking chair and read books. I would drink in each page as if I was digesting War and Peace. Page one: picture of a drum. Page two: a ball. Later, my son sat in the same chair, reading the same book. He didn’t just sit on […]

If you ever doubted having another child…

January 28, 2014 at 23:27

Mama Lewis

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Ieuan and May together on Halloween

WARNING: Do not watch the following video with anyone you would be embarrassed weeping in front of. This week on BabyCenter, I shared this video of Trenton and his sister Lindsay, who has Spinal Muscular Atrophy, a genetic disease that causes muscle weakness and progressive loss of movement: There has been no greater, unexpected joy in […]

Goodbye 2013…

December 28, 2013 at 22:10

Mama Lewis

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Congratulations to May and I ! This is our 400th post on Mama Lewis. Thanks for reading and happy holidays! To say I’m done with 2013 is an understatement. If someone offered me a lobotomy tomorrow and said, “We can remove 2013, but we’d have to remove everything, not just from about April when May’s […]

My two-year old knows something’s wrong with May

November 25, 2013 at 22:22

Mama Lewis

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Ieuan and May together on HalloweenIeuan and May together on Halloween

A few mornings ago, my husband was taking a shower and so didn’t hear May have a seizure. She cries in a thin and tremulous voice, and it is filled with terror. She still has at least one seizure like this a day, which is much better than it used to be. My husband was […]

It’s three weeks post-transplant and…

October 23, 2013 at 21:49

Mama Lewis

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My homecoming!

I’m home! I’m home, I’m home, I’m home… (that last bit was sung but thankfully for you I don’t include audio downloads on this blog) I was meant to stay in the hospital for 4-6 weeks, maybe longer. I was out in three. That makes me some kind of superwoman. I don’t exactly feel like […]