Life with a CP Baby

You gotta see this: May standing

Posted on Nov 28, 2015 | 4 comments

You gotta see this: May standing

As a child with special needs grows, sometimes it can feel like her development plateaus. Or at least, the time between developmental milestones is long or the worry is she won’t hit another. To be frank, May doesn’t hit those milestones. She is happy. She isn’t in pain. Her health and sleep have settled — and, as such, her development is pretty stable too. As in, she is what she is. And, we’ve accepted that. Before May had hip surgery, in June 2013, I would hold her hands and she would be able to stand upright and even dance around a bit. See her here: The...

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We are finally moving! (Plus a major giveaway…)

Posted on Sep 21, 2015 | 8 comments

We are finally moving! (Plus a major giveaway…)

Three years ago, I signed us up for an accessible house on the housing register. Last week, we received the keys for our new home. I raced my 4-year  old, Ieuan, in the house and up the stairs. The one flight of stairs. One flight — not four — with step-free access so we can wheel May from her school bus right into our kitchen. No more carrying six-years old May up four flights of stairs! No more exhaustion for me while I recover from cancer and struggle to carry in the groceries! No more! No how! No way Posé! (That’s Ieuan’s latest turn of phrase.) We have started...

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Welcome nursery people!

Posted on Jun 12, 2015 | 0 comments

Welcome nursery people!

Yesterday, I gave a speech at the National Day Nursery Association’s national conference. And yes, when I was dropped off by the taxi in front of this sports arena that I’m assuming seats tens of thousands, I did think, “What the hell am I doing here?” Thankfully, I wasn’t centre-pitch delivering my speech to a rugby ground of thousands, but a sedate conference room of hundreds. For those of you who saw me ramble through my speech and came here to read more about our trials and successes with nursery, I bring you this easily accessible list of previous posts...

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The joy of parenting a special needs child caught on video

Posted on May 30, 2015 | 4 comments

The joy of parenting a special needs child caught on video

I almost didn’t use the phrase “Parenting a special needs child” in the title of this post. Don’t get me wrong. I have no objection to the term “special needs child”. I live in reality. I call it like it is. But, sometimes there is no special needs in the equation. Sometimes, like this video shows, children are just children. They have temper tantrums. They get sick. And hell yes, they shriek with joy and giggles sometimes. When May shrieks with joy and giggles, as her mama, I don’t blink back bittersweet tears and think: “Ah, bless. She is so...

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Happy Birthday May – You are six!

Posted on Apr 23, 2015 | 7 comments

Happy Birthday May – You are six!

Like the title to a Winnie the Pooh book, my little half-brained baby is now a 6-year old half-brained beauty. And let’s all take a minute to pause there. SHE IS SIX. That’s nuts. I feel old. But, you know what? With everything going on the last few years, I don’t mind feeling old or the idea of growing old, especially with such a cutie by my side. And how incredible it is that, not only are we dealing with having a child this brain damaged but we enjoy her, our lives and our future. Having said that, here is the thing… May hasn’t actually made a lot of progress...

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