Life with a CP Baby

Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a...

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Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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This is the most disgusting thing you will read today

Posted on Jul 1, 2014 | 23 comments

This is the most disgusting thing you will read today

May is five years old now. She no longer fits on those baby changing tables, and she is only getting bigger. If you leave your home for more than an hour, chances are you might need to use the toilet. May does too. When we go out and she needs to be changed, we have no choice but to place her on the floor of a toilet. We wouldn’t put a baby on the floor of a toilet. What a revolting thought. We wouldn’t choose to lie about ourselves on the floors of toilets. Or, allow our toddler to eat a bit of food he drops there. But, there seems to be very little drive to provide sanitary...

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Today I’ll be speaking at Parliament about this…

Posted on Jun 17, 2014 | 6 comments

Today I’ll be speaking at Parliament about this…

Disabled children are almost completely denied child care in Britain. That means their mothers can not return to work. That means they are denied the access to early years education that is a right for every other child in the country. These children cost more; they take more time, more supervision, more training and even changes to the infrastructure of buildings. At this time, the government does not provide extra funding which leaves families like mine scrambling for child care and often needing to quit their jobs as a result. It is a human rights issue that is seriously putting children...

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On the BBC tomorrow… and next week…

Posted on Jun 10, 2014 | 1 comment

On the BBC tomorrow… and next week…

Child care for disabled children needs urgent attention by the British government. Almost 3/4 of mothers have to give up their jobs or move to part-time work after having a disabled child, according to research by the charity Contact a Family. Not only that, but they have uncovered that the fees for children who are accepted are 8x the cost of other children.  May at the time when she started at nursery. Readers of this blog will be familiar with our issues in this area: from an “outstanding” nursery that said they prioritised special needs refusing to take May to a nursery...

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