Life with a CP Baby

I keep watching these videos and they make me cry

Posted on Jul 16, 2016 | 1 comment

I keep watching these videos and they make me cry

Either I am really hormonal or there is something genuinely wrong with how people view disability. Or both. Maybe it’s both. I keep watching videos in my Facebook feed about people with disabilities being accepted — not being accepted despite their disabilities but because of their normal “I am actually a human being just like you” qualities. (Because, you know what? They are actually human beings… Yes, I know! It’s crazy isn’t it? They love and cry and want friends and eat ice cream when they are supposed to eat apples, just like you.) The first one...

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So, I had this conversation with my son…

Posted on Mar 22, 2016 | 5 comments

So, I had this conversation with my son…

Last night, I put my son to bed, said goodnight 15 times and after several hugs and requests for water was finally released downstairs. And then, I heard this: “Mama?” “Yes?” “I want May to be like me.” We talk about May, don’t get me wrong. I never close the conversation down, but he is 4-years old. We talk on that level and until this moment, I’d never heard anything like this. For him, May is May. It’s not shocking, it just is. And, maybe as such he actually deals with it a lot better than I do. He wasn’t even two the first time...

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Disability, abortion and “that woman” Katie Price

Posted on Mar 4, 2016 | 4 comments

Disability, abortion and “that woman” Katie Price

Glamour model Katie Price has done it again. And by again, I mean risen again in my estimations. I only call her a glamour model because that is what she is known for. But, for me, she is at the forefront of the most honest, heartfelt and real conversations we have about disabled children. This week she was in the news again in reference to a remark she made on national television about how, if she’d known about her son’s disabilities, she probably would have aborted him. I wrote about it in the Guardian: The context – that she didn’t know anything about raising a disabled child...

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You gotta see this: May standing

Posted on Nov 28, 2015 | 4 comments

You gotta see this: May standing

As a child with special needs grows, sometimes it can feel like her development plateaus. Or at least, the time between developmental milestones is long or the worry is she won’t hit another. To be frank, May doesn’t hit those milestones. She is happy. She isn’t in pain. Her health and sleep have settled — and, as such, her development is pretty stable too. As in, she is what she is. And, we’ve accepted that. Before May had hip surgery, in June 2013, I would hold her hands and she would be able to stand upright and even dance around a bit. See her here: The...

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We are finally moving! (Plus a major giveaway…)

Posted on Sep 21, 2015 | 8 comments

We are finally moving! (Plus a major giveaway…)

Three years ago, I signed us up for an accessible house on the housing register. Last week, we received the keys for our new home. I raced my 4-year  old, Ieuan, in the house and up the stairs. The one flight of stairs. One flight — not four — with step-free access so we can wheel May from her school bus right into our kitchen. No more carrying six-years old May up four flights of stairs! No more exhaustion for me while I recover from cancer and struggle to carry in the groceries! No more! No how! No way Posé! (That’s Ieuan’s latest turn of phrase.) We have started...

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