May's History

800 seizures a day: our epilepsy story

Posted on Nov 14, 2014 | 3 comments

800 seizures a day: our epilepsy story

This week on the Firefly Garden, bloggers from around the world are sharing stories about their children and epilepsy. I suppose our story makes for pretty grim reading. But years later, with May’s seizures down to 1 to 2 a day and causing her very little distress, we feel it is a triumph. Here is the post and make sure to click on the links at the bottom to read other parents’ stories: My daughter, May, was born with a severe brain injury. She had seizures every day, from birth. She has taken, at various points, anti-seizure medications including Phenobarbital, vitamin B6...

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Happy Birthday May! You are 5!

Posted on Apr 23, 2014 | 9 comments

Happy Birthday May! You are 5!

Sorry? May is what??? ((Gasp. Choke. Cough.)) Five? Yes, it’s happened. And this year my birthday cupcake making ended in disaster. Who knew Thomas the Tank Engine cupcakes (my choice clearly) have both cupcake mix AND frosting mix in the box. And, that they can’t be interchanged. NOTE TO SELF: Don’t open a bakery. As with previous birthday posts, let the celebrations begin! May, when you were born, here is what the doctors definitely knew you would be able to do: - pee - breathe Now at FIVE years old you can: - Bash your monkey toy and play independently with it, setting...

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By popular request: May’s first steps!

Posted on Feb 28, 2013 | 11 comments

By popular request: May’s first steps!

Today, I received an emailed bulletin from BabyCenter. Subject: Is your baby walking? It landed in my inbox because my baby, Ieuan, turned one only two weeks ago. He is like any one-year old, more of a toddler now than a baby. Crawling everywhere. Standing on shaky legs, with a big grin on his face and one small step away from delicious trouble. And, that’s wonderful. That’s exactly how it is supposed to be. But, I have another child. My daughter, May, who is also a “toddler” though she has never toddled. She is three. May is severely brain-damaged. After she was born, the only things the...

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This might make you angry. If you’re a midwife.

Posted on Nov 27, 2012 | 14 comments

This might make you angry. If you’re a midwife.

300 doctors in a room = polite applause (and a few shouts of “Bravo! Bravo!” Okay, I made that last bit up.) 1 post where I question why anyone would choose a home birth over a hospital = reader RAGE Admittedly, I don’t get it. It seems far too risky to me, during a very risky event: birth. If your toddler stopped breathing, where would you choose to be located: in your living room or in a hospital? Every single parent, in the entire world, would choose the hospital. I can’t imagine putting myself or my baby at risk, even if it was only a 15 minute ambulance journey...

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3 things I forgot about May, until I read this

Posted on Sep 10, 2012 | 2 comments

3 things I forgot about May, until I read this

Whaddya hear? Whaddya know? Three things I forgot about until I re-read this archive post from January 2010: How loudly May used to snort. That there ever was a pre-teething phase. The endless exercises we tried to help May hold something to her mouth. And, of course, that May is adorable. Never underestimate May’s superior power of cuteness. In all seriousness, I was reminded today to appreciate every moment. Small moments like these are not insignificant. It was that thought which led me back here. Without further ado: This week I’m… using teething biscuits from the...

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