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Category Archives: Medical Records

When there is no answer

February 28, 2014 at 13:22

Mama Lewis


Photo by Kevin DunnettPhoto by Kevin Dunnett

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various […]

How is May? See for yourself…

August 2, 2013 at 23:15

Mama Lewis


Holding May for the first time post-surgery

After May’s surgery, she wasn’t allowed to bear weight for six weeks. Today she returned to her standing frame. We took bets on how long she’d last. Almost two months without standing up? Really we didn’t know if she’d be laughing or crying after two minutes. Here’s what happened: By the way, she lasted ten […]

What happened when May started school (Mama update too!)

June 26, 2013 at 12:41

Mama Lewis


May at schoolMay at school

May started school today! I wish there was a high school band playing a victory tune in the background. She very happily attended and was reunited with all the wonderful people who love her dearly there. Her hips are causing her a lot less trouble. It is more fear and the anticipation of pain, than […]

Why I’m grateful for socialized medicine

June 13, 2013 at 23:31

Mama Lewis


May's first photo post-surgeryMay's first photo post-surgery

Praise here to all parents who lovingly pack a bag for their child, knowing they will be cut open the following day. As an emotional experience, May’s surgery was a complete disaster. There is no getting around that. When we entered the recovery room post-surgery, a child was rasping with the force of his own […]

How is May post-op?

June 5, 2013 at 11:42

Mama Lewis


May in recovery (note the Minnie Mouse bedding care of Grandma Bar)May in recovery (note the Minnie Mouse bedding care of Grandma Bar)

I posted a photo of May on Facebook last night, and then took it down. Something about May in a hospital bed slowly working its way down a popular newsfeed made me feel sick. Instead, here is a photo for you, where it can be followed by a lengthy paragraph of gratitude which feels far […]