Medical Records

Retrieved from the post office today…

Posted on May 1, 2014 | 0 comments

Retrieved from the post office today…

Retrieved from the post office today: one package too large for the slot in my door addressed to May. A late birthday gift? No. Six nappies. May turned five a week ago. That is one year since she was eligible for free nappies (AKA diapers for my American friends). A year of nappies we have purchased for May, at our expense – and in return, SIX. Children in the UK who cannot be potty trained receive free nappies on the NHS once they turn four. And so, I find myself with six nappies. For the past year, I’ve been begging for… six nappies. I should add the package, which I...

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When there is no answer

Posted on Feb 28, 2014 | 5 comments

When there is no answer

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various types, three lumbar punctures to her spine, blood tests (hundreds?), genetic photographic testing (where they examine her facial features) along with tests for Strep-B, infection and vitamin deficiencies. They’ve revealed nothing. “How was your...

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How is May? See for yourself…

Posted on Aug 2, 2013 | 5 comments

How is May? See for yourself…

After May’s surgery, she wasn’t allowed to bear weight for six weeks. Today she returned to her standing frame. We took bets on how long she’d last. Almost two months without standing up? Really we didn’t know if she’d be laughing or crying after two minutes. Here’s what happened: By the way, she lasted ten minutes. Ten minutes of singing and...

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What happened when May started school (Mama update too!)

Posted on Jun 26, 2013 | 9 comments

What happened when May started school (Mama update too!)

May started school today! I wish there was a high school band playing a victory tune in the background. She very happily attended and was reunited with all the wonderful people who love her dearly there. Her hips are causing her a lot less trouble. It is more fear and the anticipation of pain, than actual pain itself that makes her apprehensive to be moved. May is enjoying life again! In this photo (right) she is reunited with one of her favorite people in the world, a teaching assistant at her school. Unfortunately, I can’t show the entire photo as I don’t have permission to use...

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Why I’m grateful for socialized medicine

Posted on Jun 13, 2013 | 7 comments

Why I’m grateful for socialized medicine

Praise here to all parents who lovingly pack a bag for their child, knowing they will be cut open the following day. As an emotional experience, May’s surgery was a complete disaster. There is no getting around that. When we entered the recovery room post-surgery, a child was rasping with the force of his own screams. It wasn’t a boy, it was my daughter. I didn’t recognize her. But, it was also a major success. Performed by a surgeon whose specialism was not just orthopedic surgery, but orthopedic pediatric neurodisability surgery – a week later my daughter is already kicking her legs...

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