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Category Archives: Seizures

When there is no answer

February 28, 2014 at 13:22

Mama Lewis


Photo by Kevin DunnettPhoto by Kevin Dunnett

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various […]

My two-year old knows something’s wrong with May

November 25, 2013 at 22:22

Mama Lewis


Ieuan and May together on HalloweenIeuan and May together on Halloween

A few mornings ago, my husband was taking a shower and so didn’t hear May have a seizure. She cries in a thin and tremulous voice, and it is filled with terror. She still has at least one seizure like this a day, which is much better than it used to be. My husband was […]

What do you think of our theory about May’s pain?

May 11, 2013 at 22:49

Mama Lewis



May started giggling last night. A frothy, snorting childish giggle that bore no resemblance to the screams of late. It was wonderful. But, May’s troubles were not over. My husband and I escaped for a few hours today, but only down the road to a coffee shop. I wasn’t there long before May’s careworker phoned. […]

Why you haven’t heard from me…

May 10, 2013 at 12:29

Mama Lewis


May crying

Sometimes life with May is no picnic. This week has been a crashing disaster. I’ve been reticent to write about just how awful it has been because I don’t want the other special needs parents who read my blog to think life is a misery. And I don’t want to rehash it in a flood […]

7 things “so-called experts” never say, but should

May 3, 2013 at 16:46

Mama Lewis


You wanna fight me?You wanna fight me?

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make […]