Sleep

The Special Needs Sleep Guide or “Sleep? What the hell is that?”

Posted on Jan 7, 2015 | 2 comments

The Special Needs Sleep Guide or “Sleep? What the hell is that?”

It’s 5.30 AM. Why am I up, you ask? If you are a parent to child with special needs you probably already know. May woke at 2.30 and mewed/cried/sobbed for attention until 3.45. I’m trying to retrain her to soothe herself to sleep so I let her “cry-it-out” a method of sleep training used on babies. You let them cry and extend the amount of time in between going in to comfort them. I lay with May the first time, but after that I held her hand or stroked her face. I left her alone and I waited in my bed for the first sound of her complaints which always seemed to...

Read More

7 things “so-called experts” never say, but should

Posted on May 3, 2013 | 6 comments

7 things “so-called experts” never say, but should

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make me want to take a sharp implement to their face. In this world, so-called experts say things like: 1. I won’t tell you again that you can’t live in your own home because of May. Until I find you the perfect home, I will not frighten you...

Read More

I’m having separation anxiety!

Posted on May 3, 2012 | 5 comments

I’m having separation anxiety!

I leave tomorrow for New York City. My first vacation since before May’s birth. I am having separation anxiety already. I don’t even leave until tomorrow! I’ll be gone four nights. FOUR NIGHTS. A lot can go wrong in four nights. Let’s start with teething. It could happen. And teething is a short hop and skip to the misery that is zero sleep for a parent. I say “a” parent, because my husband will be on his own. He is completely capable. He is an amazing dad and his kids adore him. So, why is it that I have restrain myself from saying any of the following:...

Read More

Happy Birthday May! You are THREE!

Posted on Apr 23, 2012 | 9 comments

Happy Birthday May! You are THREE!

Six-months ago, when I wrote my bi-annual birthday review of May, I really despaired. I didn’t say so in the post – these birthday posts are times to reflect on progress and celebrate May’s happiness. But, her list of achievements was not all that distinguishable from the six-months previous. When I composed it, I panicked. Was May’s progress petering off? Would she still progress and develop in a healthy way? Six-months ago, just as I was writing that post, May was about to have a stimulation immersion. This after my very troubling discovery that May had been in...

Read More

It’s my birthday! 5 things on my wish list

Posted on Oct 12, 2011 | 11 comments

It’s my birthday! 5 things on my wish list

I have a wish list for May. It’s for both of us really because anything that interests her, makes her giggle or helps her be more independent is a gift for me too. My list: 1. A toddler sized Bumbo seat so that May can continue to enjoy sitting as only she knows how. 2. A teether that stays in May’s mouth while she is sleeping. 3. May to sleep through the night (Yep. That’s right. We are back there again.) 4. Ieuan to sleep through the night. (It’s like my own small Hell here at the moment. Be it a very cute version of Hell.) 5. A holiday. Anywhere. So, in part, an...

Read More