So-called experts

This is what being disabled and on the housing register looks like

Posted on Mar 1, 2015 | 4 comments

This is what being disabled and on the housing register looks like

A mother with leukaemia. A five-year old daughter so disabled she can’t even throw an arm around the shoulders of someone carrying her up the stairs to her flat. Over two years on the housing register and no chance of even being shortlisted for a property. This is the reality of being disabled and living in housing completely inadequate for your needs. Our family rents privately; the top-floor flat in a house that we moved to because it was easier to care for May there than carry her up the four-floors up we previously lived in. There was no disabled housing when we needed to...

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Let’s play the “What we wish therapists would say” game

Posted on Feb 23, 2015 | 1 comment

Let’s play the “What we wish therapists would say” game

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make me want to take a sharp implement to their face. In this world, so-called experts say things like: 1. I won’t tell you again that you can’t live in your own home because of May. Until I find you the perfect home, I will not frighten you...

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I don’t care if it’s £1,000. We should pay for disabled school transport.

Posted on Jan 30, 2015 | 1 comment

I don’t care if it’s £1,000. We should pay for disabled school transport.

On Celebrity Big Brother this week, rent-a-gob Katie Hopkins scoffed at housemate and glamour model Katie Price’s reliance on special needs transport for her son. “With the amount you earn I find that tricky,” Hopkins said, “when you could afford it yourself.” Fans of CBB may have sided with Price, until they heard how much it cost to transport her son Harvey – who has cerebral palsy, autism and is blind – to and from school. He takes a taxi and is supervised by a nurse for the journey. On the show, Price claimed this costs nearly...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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Upcoming hip surgery grrrr: Part II

Posted on Nov 23, 2014 | 1 comment

Upcoming hip surgery grrrr: Part II

It’s a universal truth that all parents want to receive as little information possible about their child being cut open and stitched back together. Right? Oh, joy. It’s surgery season. May will receive surgery on her hips this coming Monday. Previously, you may recall that the hospital was refusing to allow us to do her blood test at our local hospital. They relented, thankfully. What would have been hours in the car and pushing her across the length of a huge hospital when I am weak and my immune system is suppressed, turned into a 15 minute drive and 30 minutes in the hospital....

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