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Category Archives: So-called experts

Again, what’s worse: being born disabled or in Florida?

March 6, 2014 at 10:11

Mama Lewis

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may_florida

This week, the Florida government insisted that children with severe disabilities, even those who are dying, be subjected to weeks of standardized testing. I’ve reported on the State of Florida’s shocking treatment of children before. The disregard they show towards the most vulnerable population of their state is truly disturbing and even criminal, going as far as […]

When there is no answer

February 28, 2014 at 13:22

Mama Lewis

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Photo by Kevin DunnettPhoto by Kevin Dunnett

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various […]

This is not a joke

February 14, 2014 at 13:00

Mama Lewis

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A photo to illustrate the lunacy we are up against. This family spent two years campaigning for access to their own home. “We weren’t fighting for a massive steel ramp – we just wanted to improve Katie’s quality of life,” her mother said. Mother's anger after council install 'slalom' ramp for disabled daughter in front […]

Did they allow your special needs kiddie into nursery?

September 4, 2013 at 21:00

Mama Lewis

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May at the time she started nurseryMay at the time she started nursery

When I wanted to return to work a year after May’s birth, it should have been straight-forward. It was anything but. Finding childcare was a nightmare. It was a challenge, true – but it also was heartbreaking. It was very early in my daughter’s life to learn that many people would only pay lip service […]

Post-Paralymic horror stories of disabled Britain

August 29, 2013 at 12:32

Mama Lewis

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May at the 2012 Paralympic GamesMay at the 2012 Paralympic Games

It’s a year to the day of the Paralympics Opening Ceremonies in London. They opened with enormous fanfare, sold-out crowds and an enthusiastic hope that they were the start of a change in Britain. Even then, as excited as I was to attend the Games, I knew it wasn’t the case. As I wrote at […]