Success!

Disabled and without a home: what happened next

Posted on Mar 5, 2015 | 0 comments

Disabled and without a home: what happened next

On Monday, I published a post about our housing situation. The media picked it up and it wasn’t long before the Allocations and Verifications Team Manager for Lambeth left me a voicemail message.  In it, she asked me to email some documents over to start the process to move us to the higher band. She said she’d follow up with an email explaining what was needed and where to send it. That day? No email. The next day? No email. Wednesday, again. No email. Because, that’s the way, isn’t it? That’s exactly the problem. We can talk about the lack of housing,...

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We did it! Government changes childcare policy in favour of disabled children

Posted on Feb 9, 2015 | 0 comments

We did it! Government changes childcare policy in favour of disabled children

This just in! Contact a Family, the charity who drew up the report into childcare issues for disabled children and pressed for a Parliamentary inquiry, emailed today with the new draft legislation regarding childcare costs. Families with disabled children will now be allowed to put double the amount aside tax-free as other families. This will mean a gain of £2,000/year towards childcare costs. “Representations were made during consultation that additional support should be provided for disabled children in view of the generally higher childcare costs their parents can face. Similar comments...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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Why I love my half-brained baby

Posted on Dec 1, 2014 | 6 comments

Why I love my half-brained baby

Praise be all parents who lovingly pack a hospital bag for their child knowing they will be wheeled into surgery the next day. On Sunday night, I packed up my daughter’s clothes and nappies and all the essentials — plus her Minnie Mouse pillow and treasured, baby blanket — for her hip surgery the following day. Finally, I packed her favourite toy, a monkey music toy. On the bottom, I wrote in big letters “Property of May”. Last time she had surgery, someone took her monkey toy and placed it in the black hole of the children’s toy room in the ward. I...

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These facts don’t define me. This success does.

Posted on Sep 4, 2014 | 8 comments

These facts don’t define me. This success does.

Sainsbury’s wrote me an amazing email this week confirming that all of their stores, nationwide, will have a disabled shopping trolley for kids to use by the end of the year. Every.Single.Store. Thousands of families across the country will be able to complete a weekly shop with their child. A normal chore, once too challenging, made simple.  

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