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Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a...

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They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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This mama kicks ass

Posted on Apr 29, 2014 | 4 comments

This mama kicks ass

Six-month post-bone marrow transplant biopsy results in today: I’m still cancer free. Still kicking Leukemia’s ass. Poor Leukemia. I’d almost feel bad for it, if it hadn’t almost killed me. Instead – HA! HA! Leukemia! - I win! And you are a massive loser. You poked me with needles, drilled into my hips, made me live in the hospital for months, poisoned me and transformed me into baldy mom. Even more trying: you made me eat hospital food. And still, I kicked your ass. Want to know more? Read this six-month update on my...

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Happy Birthday May! You are 5!

Posted on Apr 23, 2014 | 9 comments

Happy Birthday May! You are 5!

Sorry? May is what??? ((Gasp. Choke. Cough.)) Five? Yes, it’s happened. And this year my birthday cupcake making ended in disaster. Who knew Thomas the Tank Engine cupcakes (my choice clearly) have both cupcake mix AND frosting mix in the box. And, that they can’t be interchanged. NOTE TO SELF: Don’t open a bakery. As with previous birthday posts, let the celebrations begin! May, when you were born, here is what the doctors definitely knew you would be able to do: - pee - breathe Now at FIVE years old you can: - Bash your monkey toy and play independently with it, setting...

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How to get your special needs kiddie to LOVE therapy

Posted on Apr 16, 2014 | 3 comments

How to get your special needs kiddie to LOVE therapy

Tummy time? Hates it. Stretches? Not fun. May is severely disabled but she is not lacking in opinions. So how do we get our kiddies who need therapy to do it, when they hate it? It takes a complete re-think of what therapy is. First, what therapy is not: It is not crammed into every free moment of the day. Children need down time too. They need time to just play (you do too!) and to let all the benefits of therapy sink in. It is not everything and anything because, hey, it can’t hurt. Yes, it can hurt if you are wasting your time and money doing something that has no proven benefit. It...

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