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Breaking news (and I was there): Tories defeated in House of Lords over ESA

Posted on Jan 28, 2016 | 0 comments

Breaking news (and I was there): Tories defeated in House of Lords over ESA

Ah, the poor government. It can be rough when things don’t go your way. Like this week when they were defeated in the courts over the Bedroom Tax. Or, when the House of Lords voted that they needed to keep income as a measure of child poverty. (Stupid House of Lords *kicks can* thinks income has something to do with to poverty!) Makes you feel all sad and depressed. Almost as bad as having cancer and then your benefits are cut. WAIT A MINUTE. STOP THE PRESSES. The government’s plan to cut Employment Support Allowance (ESA) by 30% has been defeated! ESA is the meager benefit...

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You gotta see this: May standing

Posted on Nov 28, 2015 | 4 comments

You gotta see this: May standing

As a child with special needs grows, sometimes it can feel like her development plateaus. Or at least, the time between developmental milestones is long or the worry is she won’t hit another. To be frank, May doesn’t hit those milestones. She is happy. She isn’t in pain. Her health and sleep have settled — and, as such, her development is pretty stable too. As in, she is what she is. And, we’ve accepted that. Before May had hip surgery, in June 2013, I would hold her hands and she would be able to stand upright and even dance around a bit. See her here: The...

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We are finally moving! (Plus a major giveaway…)

Posted on Sep 21, 2015 | 8 comments

We are finally moving! (Plus a major giveaway…)

Three years ago, I signed us up for an accessible house on the housing register. Last week, we received the keys for our new home. I raced my 4-year  old, Ieuan, in the house and up the stairs. The one flight of stairs. One flight — not four — with step-free access so we can wheel May from her school bus right into our kitchen. No more carrying six-years old May up four flights of stairs! No more exhaustion for me while I recover from cancer and struggle to carry in the groceries! No more! No how! No way Posé! (That’s Ieuan’s latest turn of phrase.) We have started...

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Time to share some sunshine…

Posted on Jul 23, 2015 | 6 comments

Time to share some sunshine…

Four months ago, I could barely walk across my kitchen. One month ago, I marched, along with thousands of others, from the Bank of England to Parliament Square. A march of protest against austerity, but for me another protest too: against ill health with the physical proof that I could walk the length of the march. So, did I make it?

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I have some major news to share

Posted on Jun 22, 2015 | 18 comments

I have some major news to share

For the two months, I’ve kept quiet about something. A few of my friends know, and certainly my family does, but the story still seems so outlandish to me that I’ve barely said anything to anyone about it. I’m in remission. Actually, I’m not just in remission. I’ve been in remission before. This is different. To read more click here.  

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