It’s been two weeks and still I haven’t spoken to May’s doctor – The Boss. After the first week of calls, he finally reached my husband. I phoned his PA and begged her “please, please” to have him call again because he had not answered the most urgent of questions: What were the results of the tests? Should we be raising May’s pyridoxine supplement? He didn’t call.
I wrote an email detailing all my questions. Nothing.
Another week passed. Yesterday, a flurry of more phones calls. One of the nurses on his team called me to say he would call last night. Nada.
Finally, today, I lost it.
I phoned his PA and she said, “Well, he did speak to your husband already and now he off-site for the rest of the day so I just don’t think there is anyway he will get a hold of you.” She was sharp and short. I think this must be a well-honed approach.
After two weeks of polite, controlled responses, I shot back: “Frankly, I think that is appalling. I have a brain-damaged child here. I don’t know what to do about her medication. I know, he is busy and the director of the hospital, but he is also my daughter’s doctor. He needs to phone me back.”
There was a long pause on the other end. “Um,” she said. “I would get the on-call doctor to phone you, but…”
“But, he will just say that he needs to ask the Boss,” I finished.
“Yes,” she murmured.
Then, I called the nurse that I spoke to yesterday. Like most of the nurses, she is very kind. “He did say he was going to try and call you. May is very important to him.”
I sighed and tried to hold my emotions in check. “Clearly, she is not important,” I said, “or he would have called already.”
I’m not sure what to do at this point. He is an amazing doctor, but what good is he if I can never get a hold of him?