Anyone familiar with a long-term illness or disability will understand the frustration I feel trying to get a hold of a doctor. Further posts will go into more detail about my intense irritation, but for now just today’s difficulties.
This week May has exhibited increased twitching. Essentially, it is a muscle twitch – sometimes in the face, sometimes in the hand, arm or foot. It doesn’t seem particularly serious, but as it is causing her a bit of distress, I tried to contact her Pediatric Neurologist, from here on referred to as the Boss, since that is what the on-call neurologist at the hospital called him. It’s not a euphemism. May’s doctor is also one of the directors of the hospital.
She had an EEG the previous week so it should have been as easy as someone checking that and giving us a “hey” or “nay” as to whether the twitching was anything more serious.
Unfortunately, being the Boss, means a constant battle getting a hold of him. And, as his PA is on holiday this week, the battle was already lost before I picked up the phone. I left voicemails on his phone, his PAs, the department of neurology, my community pediatric neurologist, the duty nurse and finally, finally, finally, got a hold of the on-call pediatric neurologist.
I started calling on Monday. Tonight, Friday, at 6 pm we finally received an answer about May’s EEG.
Good news! The EEG showed no further seizures. The on-call doctor told us to feel free to harass the department on Monday to make sure the Boss calls us to discuss the EEG in more detail.
A man after my own heart. Harassing professionals comes naturally to Americans.