When May was born there were a lot people who lined up to tell us what she couldn’t do. But what about what she CAN do? How about wonderful walks, visits to palaces, experiencing the theatre? All kids should be able to experience everything London has on offer. And Kids All Access… London will help your family do just that. Click below to learn about great, accessible attractions in London: Have an idea of where to visit or want May to review your attraction? Email me at...Read More
May was born on April 23rd, 2009. She suffered poor feeding, shallow breathing and major seizures in the first 12 hours of her life. She stayed in the Special Care Baby Unit for almost six weeks. (You can read more about this in the post ‘The Story of May’s Birth‘) May has severe brain damage caused by oxygen deprivation. The medical term is hypoxic-ischemic encephalopathy (HIE; for more definitions of medical jargon and silly acronyms see my GLOSSARY.) The hows and whys are a mystery and we will probably never know the reasons. There are also on-going investigations into May’s seizures which, initially, we thought disappeared, but never had. She has taken, at various points, anti-seizure medications including Phenobarbital, vitamin B6 (Pyridoxine), Pyridoxial Phosphate, Topiramate, Sodium Valporate and Lamotrigine. The last three she is still on. Aside from all this, she is a constant source of amazement and delight to her parents. We were told she might never eat or hold her head up, let alone enjoy a vigorous bounce. She continues to defy all these original predictions. How she has achieved so much with such little brain power perplexes and amazes us all. She is definitely in-charge. For further reading on my attitude towards our situation, please read my blog entry ‘Don’t insult the half-brained baby!‘ Want to help children like May? May attended Small Steps School for Parents until 2011. Small Steps teaches parents like me how to help their child gain independence. They are a very small, charitable organization that does not charge parents any fees. Please send them a...Read More
Mama Lewis AKA Stacie Lewis would like to still consider herself a teacher and a writer. However, Baby May has different ideas. Baby May is in control. Stacie is American, raised in the suburbs of Detroit, though she has lived for over ten years in London, England. She recently became a dual-citizen of Britain. As a result, she drinks a lot of tea. She can’t help it, she’s British. Stacie writes for the US BabyCenter Blog and the UK BabyCentre Blog. Her articles about May have been published in The New York Times (Motherlode), The Guardian and The Independent. She is also the author of Taking the Plunge, a book about the terrible, and terribly funny, planning of her wedding. You can read more about the book at www.stacielewis.com. Please feel free to email her at: firstname.lastname@example.org Or, follow her on Twitter at: @MamaLewisBlog...Read More
This page is like me welcoming you into my home. I’ve invited you over. Plied you with tea and biscuits. Before you know what’s happening, I’m proudly forcing you to view slides of my baby girl. The difference being, you can click back to the home page if you are bored. If you just subscribed to my blog, this page is for you! Welcome! Thank you! Marvel at my great works and despair! Or, perhaps you are completely new to the blog, maybe still wandering the lonely halls of the hospital while your child is in Special Care and wondering when the misery ends. If so, this page is also for you. May I suggest you start here for some answers, or start below for some cuteness. Or, perhaps you are my mother or someone like her. If so, this page is also for you! Because you want to read again a few choice moments. So, really then, this page is for everyone. Most recent video, May just turned six years old and STILL ridiculously happy: Caught on video! Or, check out May at almost 4 years old: How happy can a half-brained beauty be? Everything else in order from six months old on… May says, “No!” Happy Six-Month Birthday May! Witness the Fitness Guardian Article This week I’m… swimming The first in the series ‘Yes May, but is it art?’ This week I’m… going places. This week I’m… speaking baby talk (plus video update) This week I’m… rockin’ and rollin’ This week I’m… sitting. Yes, sitting! And May said, “Let there be light…” Happy Birthday May – You are 1! Mama I’m rolling! This week I’m… playing with toys This week I’m… wearing my...Read More
Raising hell... erm, raising children with special needs.
The blog started all the way back in 2009 when May was 4 1/2 months old. Read more about her superior powers of cuteness here…
May was born on April 23rd, 2009. She suffered poor feeding, shallow breathing and major seizures in the first 12 hours of her life. She stayed in the Special Care Baby Unit for almost six weeks.