Posts Tagged "babycenter"

Hello from Bed 1 on the Hospital Ward

Posted on Sep 25, 2014 | 5 comments

Hello from Bed 1 on the Hospital Ward

Remember when that bastard Leukaemia moved back in? Well, now he’s kicked me out of my house and imprisoned me in the hospital. I’m trying to be pissed off and not completely crack up. Basically, what happened was the out-patient chemo they tried over the summer didn’t work. Apparently, that isn’t so unusual with that treatment. Plan B was always more intensive hospital treatment. Welcome to Plan B. I’ll have chemo this week. Then it will take about three more weeks before I’ve recovered enough to return home. After that, we hope I’ll be back in...

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May’s first day at school: DENY. DENY. DENY. (from the archives)

Posted on Sep 15, 2014 | 3 comments

May’s first day at school: DENY. DENY. DENY. (from the archives)

From the archives a post for all those special needs parents whose children are starting school this month. DENY. DENY. DENY. I’ve been there. I’m a few years down the road now and I can say, categorically, it was the best thing we ever did for May. Here’s why: She attends a wonderful school with therapists on call and lots of people who love her. There are all kinds of things there that there is no possible way I could provide: hydrotherapy, dance class, sensory rooms and a massive playground. Hats off to you, parents. This will not be an easy term. Stay strong. You are...

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A toothy tale of incompetence and negligence

Posted on Sep 9, 2014 | 6 comments

A toothy tale of incompetence and negligence

May was just wheeled into surgery. I’m sat amongst the other parents awaiting our children’s fate. I’ve said it before, but praise be all parents who pack a bag for their child to take them – not on holiday – but to the hospital where someone will drug them and cut them open with a knife.  

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These facts don’t define me. This success does.

Posted on Sep 4, 2014 | 8 comments

These facts don’t define me. This success does.

Sainsbury’s wrote me an amazing email this week confirming that all of their stores, nationwide, will have a disabled shopping trolley for kids to use by the end of the year. Every.Single.Store. Thousands of families across the country will be able to complete a weekly shop with their child. A normal chore, once too challenging, made simple.  

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Again, what’s worse: being born disabled or in Florida?

Posted on Mar 6, 2014 | 0 comments

Again, what’s worse: being born disabled or in Florida?

This week, the Florida government insisted that children with severe disabilities, even those who are dying, be subjected to weeks of standardized testing. I’ve reported on the State of Florida’s shocking treatment of children before. The disregard they show towards the most vulnerable population of their state is truly disturbing and even criminal, going as far as judgement in the federal courts. Remember this? This is the same state that locked away children from birth. Even the pleas of the mother of a three-year old child with Down Syndrome, begging “I want my baby home” fell...

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