Posts Tagged "babycenter"

Again, what’s worse: being born disabled or in Florida?

Posted on Mar 6, 2014 | 0 comments

Again, what’s worse: being born disabled or in Florida?

This week, the Florida government insisted that children with severe disabilities, even those who are dying, be subjected to weeks of standardized testing. I’ve reported on the State of Florida’s shocking treatment of children before. The disregard they show towards the most vulnerable population of their state is truly disturbing and even criminal, going as far as judgement in the federal courts. Remember this? This is the same state that locked away children from birth. Even the pleas of the mother of a three-year old child with Down Syndrome, begging “I want my baby home” fell...

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Should you have another baby?

Posted on Feb 9, 2014 | 1 comment

Should you have another baby?

Last week on BabyCenter, I mused over whether parents should have another child – and specifically I was thinking of parents of children with special needs, but it could be anyone who just loves babies and is an enormous sap. Should you have another baby? Here’s the answer: Three years ago, I felt like an absolute lunatic when I reluctantly admitted to my husband what’d I’d been mulling over for the past six months. “Sometimes,” I said, “I think about having another baby.” “I’d have another baby with you,” he returned with a...

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If you ever doubted having another child…

Posted on Jan 28, 2014 | 3 comments

If you ever doubted having another child…

WARNING: Do not watch the following video with anyone you would be embarrassed weeping in front of. This week on BabyCenter, I shared this video of Trenton and his sister Lindsay, who has Spinal Muscular Atrophy, a genetic disease that causes muscle weakness and progressive loss of movement: There has been no greater, unexpected joy in my life than seeing my children’s relationship blossom. My daughter’s disabilities made me question whether a second child would benefit her or take valuable time away from her. But one thing I thought less of was whether it would benefit him to be...

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How to choose the perfect gift for your special needs kiddie!

Posted on Nov 29, 2013 | 0 comments

How to choose the perfect gift for your special needs kiddie!

It’s that time of year! And if you are American, today is the official start to the holiday gift buying season. Here’s a post I wrote for BabyCenter for the occasion. Please click through for an amazing holiday gift guide (inspired by many Mama Lewis readers’ ideas – so thank you!) It’s a gamble all parents take. Every holiday, we pin our hopes on a toy, praying our child will love it. My daughter May is disabled and we have the same gamble, but the probability that it will be a costly, unused toy – not to mention, the heartbreak that comes with that – is strong. May...

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Luekemia won’t let me go to my baby’s birthday

Posted on Jul 5, 2013 | 7 comments

Luekemia won’t let me go to my baby’s birthday

Leukemia, you bastard. Today, is Ieuan’s birthday and I wasn’t there when he woke up and I won’t be there to blow out candles. I really want to punch Leukemia in the throat. Last night, in a toxic mix of despair and frustration, I wrote this post on BabyCenter Luekemia won’t let me go to my baby’s birthday: Leukemia is a thief. Tomorrow, it will hold me hostage at the hospital during my son’s second birthday. It will steal away my memories. I hate Leukemia. But, anger is good. It comes from a place of strength. Yesterday, a nurse in the hospital badgered...

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