Posts Tagged "babycenter"

So, I had this conversation with my son…

Posted on Mar 22, 2016 | 3 comments

So, I had this conversation with my son…

Last night, I put my son to bed, said goodnight 15 times and after several hugs and requests for water was finally released downstairs. And then, I heard this: “Mama?” “Yes?” “I want May to be like me.” We talk about May, don’t get me wrong. I never close the conversation down, but he is 4-years old. We talk on that level and until this moment, I’d never heard anything like this. For him, May is May. It’s not shocking, it just is. And, maybe as such he actually deals with it a lot better than I do. He wasn’t even two the first time...

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You gotta see this: May standing

Posted on Nov 28, 2015 | 4 comments

You gotta see this: May standing

As a child with special needs grows, sometimes it can feel like her development plateaus. Or at least, the time between developmental milestones is long or the worry is she won’t hit another. To be frank, May doesn’t hit those milestones. She is happy. She isn’t in pain. Her health and sleep have settled — and, as such, her development is pretty stable too. As in, she is what she is. And, we’ve accepted that. Before May had hip surgery, in June 2013, I would hold her hands and she would be able to stand upright and even dance around a bit. See her here: The...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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The Special Needs Sleep Guide or “Sleep? What the hell is that?”

Posted on Jan 7, 2015 | 2 comments

The Special Needs Sleep Guide or “Sleep? What the hell is that?”

It’s 5.30 AM. Why am I up, you ask? If you are a parent to child with special needs you probably already know. May woke at 2.30 and mewed/cried/sobbed for attention until 3.45. I’m trying to retrain her to soothe herself to sleep so I let her “cry-it-out” a method of sleep training used on babies. You let them cry and extend the amount of time in between going in to comfort them. I lay with May the first time, but after that I held her hand or stroked her face. I left her alone and I waited in my bed for the first sound of her complaints which always seemed to...

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What mountain would you climb for the perfect toy?

Posted on Dec 23, 2014 | 1 comment

What mountain would you climb for the perfect toy?

Does the perfect toy exist? What if your child is disabled cognitively and physically like mine is? Check my bank account. I’ve wasted a lot of money trying to solve this conundrum. And yet, we did find the perfect toy. For my daughter, this is her monkey toy. It is a jungle symphony of noises and songs. It is bright so she can see it easily, sturdy so she can smack it at will and has chunky components that activate easily despite her physical limitations. Yes, perfect. She’s had it since she was a baby and it’s lasted five years now. That’s an amazing lifespan for a...

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