Posts Tagged "blogging"

My husband is literally giving the shirt off his back

Posted on Jul 31, 2014 | 0 comments

My husband is literally giving the shirt off his back

…and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. It’s my last day of the first round of my new chemotherapy – one week on, three weeks off. To say I’m thrilled to see the back of this place for a few weeks is an understatement. The chemotherapy day unit is one of the most depressing holes I’ve had the pleasure of being made to wait three hours for a five minute treatment in. Or, spa treatment as I insist my doctor calls it. Which she does. Why not...

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That bastard Leukemia has moved back in

Posted on Jul 25, 2014 | 8 comments

That bastard Leukemia has moved back in

That pissant is back. I have a very small insurgence of cells, but in the World of Cancer there is no small. There is only remission or not. I’m not. Today, I will start chemotherapy. It’s out-patient this time. That’s one “bonus”. Also, I’ve been told this chemo won’t make me sick. I’m guess I’m pleased to know that too. I don’t want to phone/email/text everyone I know with this information so I’m writing here. Plus, it gives me a bit more length to fully explain what is happening. Every time I write something like this and...

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The report is clear: disabled children’s rights are being compromised

Posted on Jul 13, 2014 | 3 comments

The report is clear: disabled children’s rights are being compromised

This week, I attended the launch of the Parliamentary report into childcare for disabled children. Chaired by MPs Robert Buckland and Pat Glass, it took into consideration extensive research by Contact a Family and the personal evidence of parents, local councils and education providers. The report is stark reading. The statistics are truly awful. Children are being denied a right to an education and play, and this goes against the UN Convention on the Rights of Children, not to mention our own British laws. In short, it is illegal. On the night, I was asked to speak again. I pointed out the...

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Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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This is the most disgusting thing you will read today

Posted on Jul 1, 2014 | 23 comments

This is the most disgusting thing you will read today

May is five years old now. She no longer fits on those baby changing tables, and she is only getting bigger. If you leave your home for more than an hour, chances are you might need to use the toilet. May does too. When we go out and she needs to be changed, we have no choice but to place her on the floor of a toilet. We wouldn’t put a baby on the floor of a toilet. What a revolting thought. We wouldn’t choose to lie about ourselves on the floors of toilets. Or, allow our toddler to eat a bit of food he drops there. But, there seems to be very little drive to provide sanitary...

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