Posts Tagged "blogging"

Hello from me again! I’m STILL in Hospital Bed 1.

Posted on Oct 6, 2014 | 0 comments

Hello from me again! I’m STILL in Hospital Bed 1.

And, I’ll probably be here for a good while longer. I’ve finished the chemotherapy, but the recovery can take three weeks or more. Chemotherapy is one of the strangest experiences a person can go through. First of all, I’m allowing people to poison me. Secondly, it is totally unpredictable. People respond very differently to treatments, and I respond different day-to-day. So, Day 2 for me was the worst and I expected each day of chemo to get worse from that point, but instead they got relatively better. Relatively. It still sucked. One thing that keeps me going through it...

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Hello from Bed 1 on the Hospital Ward

Posted on Sep 25, 2014 | 5 comments

Hello from Bed 1 on the Hospital Ward

Remember when that bastard Leukaemia moved back in? Well, now he’s kicked me out of my house and imprisoned me in the hospital. I’m trying to be pissed off and not completely crack up. Basically, what happened was the out-patient chemo they tried over the summer didn’t work. Apparently, that isn’t so unusual with that treatment. Plan B was always more intensive hospital treatment. Welcome to Plan B. I’ll have chemo this week. Then it will take about three more weeks before I’ve recovered enough to return home. After that, we hope I’ll be back in...

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May’s first day at school: DENY. DENY. DENY. (from the archives)

Posted on Sep 15, 2014 | 3 comments

May’s first day at school: DENY. DENY. DENY. (from the archives)

From the archives a post for all those special needs parents whose children are starting school this month. DENY. DENY. DENY. I’ve been there. I’m a few years down the road now and I can say, categorically, it was the best thing we ever did for May. Here’s why: She attends a wonderful school with therapists on call and lots of people who love her. There are all kinds of things there that there is no possible way I could provide: hydrotherapy, dance class, sensory rooms and a massive playground. Hats off to you, parents. This will not be an easy term. Stay strong. You are...

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A toothy tale of incompetence and negligence

Posted on Sep 9, 2014 | 6 comments

A toothy tale of incompetence and negligence

May was just wheeled into surgery. I’m sat amongst the other parents awaiting our children’s fate. I’ve said it before, but praise be all parents who pack a bag for their child to take them – not on holiday – but to the hospital where someone will drug them and cut them open with a knife.  

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My husband is literally giving the shirt off his back

Posted on Jul 31, 2014 | 0 comments

My husband is literally giving the shirt off his back

…and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. It’s my last day of the first round of my new chemotherapy – one week on, three weeks off. To say I’m thrilled to see the back of this place for a few weeks is an understatement. The chemotherapy day unit is one of the most depressing holes I’ve had the pleasure of being made to wait three hours for a five minute treatment in. Or, spa treatment as I insist my doctor calls it. Which she does. Why not...

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