Posts Tagged "blogging"

May’s first day at school: DENY. DENY. DENY. (from the archives)

Posted on Sep 15, 2014 | 3 comments

May’s first day at school: DENY. DENY. DENY. (from the archives)

From the archives a post for all those special needs parents whose children are starting school this month. DENY. DENY. DENY. I’ve been there. I’m a few years down the road now and I can say, categorically, it was the best thing we ever did for May. Here’s why: She attends a wonderful school with therapists on call and lots of people who love her. There are all kinds of things there that there is no possible way I could provide: hydrotherapy, dance class, sensory rooms and a massive playground. Hats off to you, parents. This will not be an easy term. Stay strong. You are...

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A toothy tale of incompetence and negligence

Posted on Sep 9, 2014 | 5 comments

A toothy tale of incompetence and negligence

May was just wheeled into surgery. I’m sat amongst the other parents awaiting our children’s fate. I’ve said it before, but praise be all parents who pack a bag for their child to take them – not on holiday – but to the hospital where someone will drug them and cut them open with a knife.  

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My husband is literally giving the shirt off his back

Posted on Jul 31, 2014 | 0 comments

My husband is literally giving the shirt off his back

…and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. It’s my last day of the first round of my new chemotherapy – one week on, three weeks off. To say I’m thrilled to see the back of this place for a few weeks is an understatement. The chemotherapy day unit is one of the most depressing holes I’ve had the pleasure of being made to wait three hours for a five minute treatment in. Or, spa treatment as I insist my doctor calls it. Which she does. Why not...

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That bastard Leukemia has moved back in

Posted on Jul 25, 2014 | 9 comments

That bastard Leukemia has moved back in

That pissant is back. I have a very small insurgence of cells, but in the World of Cancer there is no small. There is only remission or not. I’m not. Today, I will start chemotherapy. It’s out-patient this time. That’s one “bonus”. Also, I’ve been told this chemo won’t make me sick. I’m guess I’m pleased to know that too. I don’t want to phone/email/text everyone I know with this information so I’m writing here. Plus, it gives me a bit more length to fully explain what is happening. Every time I write something like this and...

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The report is clear: disabled children’s rights are being compromised

Posted on Jul 13, 2014 | 3 comments

The report is clear: disabled children’s rights are being compromised

This week, I attended the launch of the Parliamentary report into childcare for disabled children. Chaired by MPs Robert Buckland and Pat Glass, it took into consideration extensive research by Contact a Family and the personal evidence of parents, local councils and education providers. The report is stark reading. The statistics are truly awful. Children are being denied a right to an education and play, and this goes against the UN Convention on the Rights of Children, not to mention our own British laws. In short, it is illegal. On the night, I was asked to speak again. I pointed out the...

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