Posts Tagged "blogging"

The video that changed everything

Posted on Mar 12, 2015 | 8 comments

The video that changed everything

Last week, ITV filmed May and I in our housing showing the reality of disabled housing. As we filmed, the reality of our lives wasn’t just highlighted in the piece, but starkly apparent to me. Only an hour later – before it even aired – we received our first contact from Lambeth council. I had to carry May up the stairs; we have four flights at various points in the house, inside and out. In the clip below, you can hear me puffing as I heave her up those stairs. They asked me hard questions, emotional questions that cut to the heart of what our lives are like. Not all of it...

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Hello, Lambeth? I didn’t expect this to happen so soon.

Posted on Mar 6, 2015 | 0 comments

Hello, Lambeth? I didn’t expect this to happen so soon.

On Monday, I posted about our housing problems. By Wednesday, we were finally placed in the highest priority band for housing. Now it is Friday. Only five days later and here today, a perfect example of how families like ours are treated. We used to have a wonderful social worker named Beverly. She was a force of nature. My housing issue would never have been an issue. She would have handled it on our behalf. That’s how good social work is meant to work. As an example, Lambeth are meant to pay us “direct payments” towards our care worker twice a month. Over the course of...

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This is not a joke.

Posted on Feb 15, 2015 | 0 comments

This is not a joke.

A photo to illustrate the lunacy we are up against. This family spent two years campaigning for access to their own home. “We weren’t fighting for a massive steel ramp – we just wanted to improve Katie’s quality of life,” her mother said. Mother’s anger after council install ‘slalom’ ramp for disabled daughter in front garden http://t.co/TI0w9kt0f8 pic.twitter.com/IAVRsnfL71 — Telegraph News (@TelegraphNews) February 13, 2014   What’s the craziest thing you know of that a council has done to “help” a disabled...

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We did it! Government changes childcare policy in favour of disabled children

Posted on Feb 9, 2015 | 0 comments

We did it! Government changes childcare policy in favour of disabled children

This just in! Contact a Family, the charity who drew up the report into childcare issues for disabled children and pressed for a Parliamentary inquiry, emailed today with the new draft legislation regarding childcare costs. Families with disabled children will now be allowed to put double the amount aside tax-free as other families. This will mean a gain of £2,000/year towards childcare costs. “Representations were made during consultation that additional support should be provided for disabled children in view of the generally higher childcare costs their parents can face. Similar comments...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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