Posts Tagged "blogging"

This is not a joke.

Posted on Feb 15, 2015 | 0 comments

This is not a joke.

A photo to illustrate the lunacy we are up against. This family spent two years campaigning for access to their own home. “We weren’t fighting for a massive steel ramp – we just wanted to improve Katie’s quality of life,” her mother said. Mother’s anger after council install ‘slalom’ ramp for disabled daughter in front garden http://t.co/TI0w9kt0f8 pic.twitter.com/IAVRsnfL71 — Telegraph News (@TelegraphNews) February 13, 2014   What’s the craziest thing you know of that a council has done to “help” a disabled...

Read More

We did it! Government changes childcare policy in favour of disabled children

Posted on Feb 9, 2015 | 0 comments

We did it! Government changes childcare policy in favour of disabled children

This just in! Contact a Family, the charity who drew up the report into childcare issues for disabled children and pressed for a Parliamentary inquiry, emailed today with the new draft legislation regarding childcare costs. Families with disabled children will now be allowed to put double the amount aside tax-free as other families. This will mean a gain of £2,000/year towards childcare costs. “Representations were made during consultation that additional support should be provided for disabled children in view of the generally higher childcare costs their parents can face. Similar comments...

Read More

Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

Read More

Kids all access… Tower Bridge

Posted on Jan 19, 2015 | 0 comments

Kids all access… Tower Bridge

When you are confined to a wheelchair, it is hard to imagine climbing to the greatest heights. What am I talking about??? We live in LONDON. Wheelchairs top any view if there’s a lift or a wheel involved. A big wheel – the London Eye.  This weekend we hit new heights going to the Tower Bridge Exhibition. The exhibition allows you to take a lift up to the top of Tower Bridge and walk across a glass walkway over the Thames river. The views are incredible. My three-year old especially enjoyed “the show” which was a film in which  life-sized historical figures bickered...

Read More

What mountain would you climb for the perfect toy?

Posted on Dec 23, 2014 | 1 comment

What mountain would you climb for the perfect toy?

Does the perfect toy exist? What if your child is disabled cognitively and physically like mine is? Check my bank account. I’ve wasted a lot of money trying to solve this conundrum. And yet, we did find the perfect toy. For my daughter, this is her monkey toy. It is a jungle symphony of noises and songs. It is bright so she can see it easily, sturdy so she can smack it at will and has chunky components that activate easily despite her physical limitations. Yes, perfect. She’s had it since she was a baby and it’s lasted five years now. That’s an amazing lifespan for a...

Read More