Posts Tagged "blogging"

Court rules strollers have priority over wheelchairs

Posted on Dec 13, 2014 | 0 comments

Court rules strollers have priority over wheelchairs

This week in Britain, a court of appeal ruled that bus companies don’t have to prioritise wheelchair users over mothers pushing strollers. It’s a decision that pits buggies against wheelchairs and mothers against the disabled. That’s not a battle I feel comfortable with. And does it even exist? After all, I’m a mother and I have a disabled daughter – that’s one mighty internal struggle. On BabyCentre, I wrote about the ruling and was pleased that majority of folk on the web site and then on their Facebook page agreed: that outside of extreme situations,...

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Why I love my half-brained baby

Posted on Dec 1, 2014 | 6 comments

Why I love my half-brained baby

Praise be all parents who lovingly pack a hospital bag for their child knowing they will be wheeled into surgery the next day. On Sunday night, I packed up my daughter’s clothes and nappies and all the essentials — plus her Minnie Mouse pillow and treasured, baby blanket — for her hip surgery the following day. Finally, I packed her favourite toy, a monkey music toy. On the bottom, I wrote in big letters “Property of May”. Last time she had surgery, someone took her monkey toy and placed it in the black hole of the children’s toy room in the ward. I...

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800 seizures a day: our epilepsy story

Posted on Nov 14, 2014 | 3 comments

800 seizures a day: our epilepsy story

This week on the Firefly Garden, bloggers from around the world are sharing stories about their children and epilepsy. I suppose our story makes for pretty grim reading. But years later, with May’s seizures down to 1 to 2 a day and causing her very little distress, we feel it is a triumph. Here is the post and make sure to click on the links at the bottom to read other parents’ stories: My daughter, May, was born with a severe brain injury. She had seizures every day, from birth. She has taken, at various points, anti-seizure medications including Phenobarbital, vitamin B6...

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What’s happening to May’s hips?

Posted on Nov 11, 2014 | 2 comments

What’s happening to May’s hips?

A year and a half ago, May had a major hip operation. She recovered well. There were some lingering issues — like she still crosses her legs and you can see one of the metal pieces holding her hip bone in place under her skin. Not nice and not ideal, but much better than the pain she had been in. Why did she need surgery at three years old? You probably shouldn’t read this if you are squeamish. In recent months, May has not been doing as well. At the time of her dental surgery, we suspected her pain wasn’t entirely in her mouth and that theory has been proven right. She can...

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Health update from me: I’m one bald mama

Posted on Oct 29, 2014 | 1 comment

Health update from me: I’m one bald mama

Bring on the Halloween jokes early. I’m one bald mama and it is seriously scary that I don’t need a costume for next week. “What are you going to dress up as?” a nurse asked me today. “Me,” I responded. A sense of humor is good in these situations. But, of course, it isn’t all funny. Over the summer, I received two rounds of chemotherapy as an outpatient. This meant that my summer wasn’t stolen. I went to park with my kids. I felt the sun on my face and ate ice cream by the bucketload. My husband and I even went on holiday for the first time...

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