Posts Tagged "cerebral palsy"

Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a...

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The report is clear: disabled children’s rights are being compromised

Posted on Jul 13, 2014 | 3 comments

The report is clear: disabled children’s rights are being compromised

This week, I attended the launch of the Parliamentary report into childcare for disabled children. Chaired by MPs Robert Buckland and Pat Glass, it took into consideration extensive research by Contact a Family and the personal evidence of parents, local councils and education providers. The report is stark reading. The statistics are truly awful. Children are being denied a right to an education and play, and this goes against the UN Convention on the Rights of Children, not to mention our own British laws. In short, it is illegal. On the night, I was asked to speak again. I pointed out the...

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Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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This is the most disgusting thing you will read today

Posted on Jul 1, 2014 | 23 comments

This is the most disgusting thing you will read today

May is five years old now. She no longer fits on those baby changing tables, and she is only getting bigger. If you leave your home for more than an hour, chances are you might need to use the toilet. May does too. When we go out and she needs to be changed, we have no choice but to place her on the floor of a toilet. We wouldn’t put a baby on the floor of a toilet. What a revolting thought. We wouldn’t choose to lie about ourselves on the floors of toilets. Or, allow our toddler to eat a bit of food he drops there. But, there seems to be very little drive to provide sanitary...

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They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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