Posts Tagged "disability"

Disability, abortion and “that woman” Katie Price

Posted on Mar 4, 2016 | 4 comments

Disability, abortion and “that woman” Katie Price

Glamour model Katie Price has done it again. And by again, I mean risen again in my estimations. I only call her a glamour model because that is what she is known for. But, for me, she is at the forefront of the most honest, heartfelt and real conversations we have about disabled children. This week she was in the news again in reference to a remark she made on national television about how, if she’d known about her son’s disabilities, she probably would have aborted him. I wrote about it in the Guardian: The context – that she didn’t know anything about raising a disabled child...

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It could have easily been me. My life rationed away.

Posted on Dec 9, 2015 | 3 comments

It could have easily been me. My life rationed away.

I read a deeply disturbing article last night. I should have been asleep, but instead I scrolled through The Guardian’s web site and accidentally landed on a story that resonated all too closely to my own life. “A 22-year-old woman with relapsed acute myeloid leukaemia died after being denied a second allogeneic stem cell transplant,” the article in The Guardian on NHS rationing read. “Her doctor said her late relapse and good response to salvage chemotherapy meant there was a 50% chance that a further transplant would have cured the disease. However, the local GP-led...

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You gotta see this: May standing

Posted on Nov 28, 2015 | 4 comments

You gotta see this: May standing

As a child with special needs grows, sometimes it can feel like her development plateaus. Or at least, the time between developmental milestones is long or the worry is she won’t hit another. To be frank, May doesn’t hit those milestones. She is happy. She isn’t in pain. Her health and sleep have settled — and, as such, her development is pretty stable too. As in, she is what she is. And, we’ve accepted that. Before May had hip surgery, in June 2013, I would hold her hands and she would be able to stand upright and even dance around a bit. See her here: The...

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Time to share some sunshine…

Posted on Jul 23, 2015 | 6 comments

Time to share some sunshine…

Four months ago, I could barely walk across my kitchen. One month ago, I marched, along with thousands of others, from the Bank of England to Parliament Square. A march of protest against austerity, but for me another protest too: against ill health with the physical proof that I could walk the length of the march. So, did I make it?

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Welcome nursery people!

Posted on Jun 12, 2015 | 0 comments

Welcome nursery people!

Yesterday, I gave a speech at the National Day Nursery Association’s national conference. And yes, when I was dropped off by the taxi in front of this sports arena that I’m assuming seats tens of thousands, I did think, “What the hell am I doing here?” Thankfully, I wasn’t centre-pitch delivering my speech to a rugby ground of thousands, but a sedate conference room of hundreds. For those of you who saw me ramble through my speech and came here to read more about our trials and successes with nursery, I bring you this easily accessible list of previous posts...

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