Posts Tagged "fatherhood"

What you don’t know about my husband

Posted on Oct 13, 2014 | 0 comments

What you don’t know about my husband

I am the face of this blog. As such, people often tell me how much they admire my dedication to May. What people don’t realize is that my husband deserves much of the credit. My husband is May’s main caregiver. Her bather. Her chef. Her afternoon sleeping companion. She’s watched a full Tour de France. Twice. All because she spends so much time with him. “This is the song that proved May has better taste in music than you, Stacie,” is a typical aside in our conversation. And May does genuinely has a more eclectic taste in music than I do. Why? Because she spends...

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May has the answer to all your ills

Posted on Mar 27, 2014 | 0 comments

May has the answer to all your ills

A reminder that when the world is throwing a storm of misery your way, one little girl knows what to say. From the archives, here is May, only a few months old. She severely physically and cognitively challenged and yet she knows what you should be shouting. It is the perfect and only response to everyone who is giving you grief. For when you want to play with your child but feel pressure to do therapy. When only a cuddle will do, but a mountain of work awaits. Don’t mess with her. May says, “No!” Warning: cute baby...

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Should you have another baby?

Posted on Feb 9, 2014 | 1 comment

Should you have another baby?

Last week on BabyCenter, I mused over whether parents should have another child – and specifically I was thinking of parents of children with special needs, but it could be anyone who just loves babies and is an enormous sap. Should you have another baby? Here’s the answer: Three years ago, I felt like an absolute lunatic when I reluctantly admitted to my husband what’d I’d been mulling over for the past six months. “Sometimes,” I said, “I think about having another baby.” “I’d have another baby with you,” he returned with a...

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My two-year old knows something’s wrong with May

Posted on Nov 25, 2013 | 5 comments

My two-year old knows something’s wrong with May

A few mornings ago, my husband was taking a shower and so didn’t hear May have a seizure. She cries in a thin and tremulous voice, and it is filled with terror. She still has at least one seizure like this a day, which is much better than it used to be. My husband was letting me sleep in, so I didn’t hear it either. Very softly, there was a knock at my door. “Mama?” a little voice said. “May-May’s crying.” I rushed out and held her in time to comfort her. Later that morning, Ieuan made himself shake. Just like May, his arms went rigid and his fingers...

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5 new things I learned about May today

Posted on Jul 7, 2013 | 8 comments

Here is how this post was originally going to start until today: It’s one month post-surgery. How is May doing? Short answer: I don’t know. Long answer: I’m not at home – I have been in the hospital for three weeks – so I haven’t seen her (Again, I must stress for an agonizing three weeks!) though I take my info from a reliable source AKA my husband. Here is how this post will read now, after my husband paid me a call this afternoon in the visitors’ room of our ward and he said he had a surprise (click on the photos to enlarge): As such, I do have...

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