Posts Tagged "lambeth"

They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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This is not a joke

Posted on Feb 14, 2014 | 2 comments

This is not a joke

A photo to illustrate the lunacy we are up against. This family spent two years campaigning for access to their own home. “We weren’t fighting for a massive steel ramp – we just wanted to improve Katie’s quality of life,” her mother said. Mother’s anger after council install ‘slalom’ ramp for disabled daughter in front garden http://t.co/TI0w9kt0f8 pic.twitter.com/IAVRsnfL71 — Telegraph News (@TelegraphNews) February 13, 2014 What’s the craziest thing you know of that a council has done to “help” a disabled...

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I kicked a doctor off May’s team, Part II: The response

Posted on Nov 2, 2012 | 2 comments

I kicked a doctor off May’s team, Part II: The response

Last week, I kicked a doctor off May’s team. I did that. Me. I’m not, shall we say, subtle with my opinions. If something needs to be said, leave it to the American to say it. But, that doesn’t convert necessarily into full blown complaints, or formal dismissals. So, it took me a few days to send the email, to the whole of May’s team, requesting that she never work with May again. I haven’t made a request like that before. I didn’t hear from the team for a few days more. Then, the nurse at May’s school wrote me. She’d forwarded my letter to the...

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The bombshell’s explosive result

Posted on Sep 4, 2012 | 0 comments

The bombshell’s explosive result

Let’s start with my email to Head of SEN Services who said Lambeth would cease to deliver SEN transport for children like May, for the sake of “developing their independence”: 1. How exactly do you hope to reach your ambition of independent travel for my three-year old daughter, who has epilepsy and can not sit? Doctors believe she will never sit independently. Please share with us your magic solution whereby she can sit on a bus without falling over. We are keen to learn. 2. Why did it take you eight months from decision to posting out this letter? Could it be you waited...

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I arrived home from the States to find this bombshell in my mail…

Posted on Sep 2, 2012 | 14 comments

I arrived home from the States to find this bombshell in my mail…

Dear Mr and Mrs Lewis, It was decided by [Lambeth] Council’s Cabinet on 16th of January 2012, that two key policy changes were necessary to the Authority’s Home to School travel assistance policy. The aim of this policy is to increase independent travel for young people with statements of special education needs (SEN) to prepare them for adulthood. We will be working to introduce the changes after the October half term 2012. [and now just the part that applies to us] 2. Families where a motability vehicle has been provided for the benefit of the child [or the equivalent in...

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