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Tag Archives: nhs

For once, the kind of madness you’d vote for…

March 3, 2014 at 16:44

Mama Lewis



Mama Lewis and the Amazing Adventures of the Half-Brained Baby has been nominated for a MAD Blog Award. Want to help us to win? Consider this: In the last year, this blog: fought the supermarkets and won shopping trolleys for disabled children across Britain. helped families with special needs kids to visit London’s attractions in the […]

When there is no answer

February 28, 2014 at 13:22

Mama Lewis


Photo by Kevin DunnettPhoto by Kevin Dunnett

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various […]

It’s three weeks post-transplant and…

October 23, 2013 at 21:49

Mama Lewis


My homecoming!

I’m home! I’m home, I’m home, I’m home… (that last bit was sung but thankfully for you I don’t include audio downloads on this blog) I was meant to stay in the hospital for 4-6 weeks, maybe longer. I was out in three. That makes me some kind of superwoman. I don’t exactly feel like […]

I’m stuck in a hospital and can’t get out!

October 9, 2013 at 17:56

Mama Lewis


Me in my hospital room pre-transplant

It’s the Transplant News and I’m reporting to you LIVE from Bed 6 in the Hematology ward at Kings College Hospital. After a shaky start – and it was not fun – of powerful chemotherapy drugs, I’m finally ready to type again. It has been weeks since my last post. But I was very ill. […]

Bad Mother Story (#246,000,001)

August 31, 2013 at 13:44

Mama Lewis


Adorable monkey in glasses!

I’m a bad mom. Months ago – six or seven months ago – I took May to Great Ormond Street Hospital to get her eyes checked by a specialist team. Two years ago, I begged, pleaded and even punched some people out to get her seen by them. (Okay, I didn’t punch anyone in in […]