Posts Tagged "nhs"

Let’s play the “What we wish therapists would say” game

Posted on Feb 23, 2015 | 0 comments

Let’s play the “What we wish therapists would say” game

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make me want to take a sharp implement to their face. In this world, so-called experts say things like: 1. I won’t tell you again that you can’t live in your own home because of May. Until I find you the perfect home, I will not frighten you...

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Why I bottle-fed my daughter and don’t regret it

Posted on Jan 28, 2015 | 1 comment

Why I bottle-fed my daughter and don’t regret it

My breastfeeding battle lasted five weeks. “Battle” is the delicate way to describe it. The first five weeks of my daughter’s life, all spent in the neonatal intensive care unit at our local hospital. It was hard. I can’t deny that. And it was all because of breastfeeding. May was born brain-damged and even that she could suck was a victory. The breastfeeding team in the hospital were very supportive. They visited me every day, anytime I needed them. My daughter seemed to be making progress, but she was still dependent on tube...

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Why I love my half-brained baby

Posted on Dec 1, 2014 | 6 comments

Why I love my half-brained baby

Praise be all parents who lovingly pack a hospital bag for their child knowing they will be wheeled into surgery the next day. On Sunday night, I packed up my daughter’s clothes and nappies and all the essentials — plus her Minnie Mouse pillow and treasured, baby blanket — for her hip surgery the following day. Finally, I packed her favourite toy, a monkey music toy. On the bottom, I wrote in big letters “Property of May”. Last time she had surgery, someone took her monkey toy and placed it in the black hole of the children’s toy room in the ward. I...

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Upcoming hip surgery grrrr: Part II

Posted on Nov 23, 2014 | 1 comment

Upcoming hip surgery grrrr: Part II

It’s a universal truth that all parents want to receive as little information possible about their child being cut open and stitched back together. Right? Oh, joy. It’s surgery season. May will receive surgery on her hips this coming Monday. Previously, you may recall that the hospital was refusing to allow us to do her blood test at our local hospital. They relented, thankfully. What would have been hours in the car and pushing her across the length of a huge hospital when I am weak and my immune system is suppressed, turned into a 15 minute drive and 30 minutes in the hospital....

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What’s happening to May’s hips?

Posted on Nov 11, 2014 | 2 comments

What’s happening to May’s hips?

A year and a half ago, May had a major hip operation. She recovered well. There were some lingering issues — like she still crosses her legs and you can see one of the metal pieces holding her hip bone in place under her skin. Not nice and not ideal, but much better than the pain she had been in. Why did she need surgery at three years old? You probably shouldn’t read this if you are squeamish. In recent months, May has not been doing as well. At the time of her dental surgery, we suspected her pain wasn’t entirely in her mouth and that theory has been proven right. She can...

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