Posts Tagged "school"

Are disabled children being denied their right to an education?

Posted on Jul 3, 2014 | 2 comments

Are disabled children being denied their right to an education?

May and I appear in The Independent today defending disabled children’s right to early years education. The article takes much from the speech I gave in Parliament, and thus the reason why I didn’t publish the speech earlier. The title of the article is ‘Are disabled children being refused the right to an early years education?‘ — but it could have easily have read ‘Are the mothers of disabled children being refuse their basic right to work?’ The issues go hand in hand. Here is the article. You can see it in full on The Independent’s website....

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They invited WHO to Parliament? (Hint: You know her.)

Posted on Jun 25, 2014 | 6 comments

They invited WHO to Parliament? (Hint: You know her.)

It is a terrible thing for a child to be born with one burden - their disability – and find they are more encumbered by another, our exclusion. Last week, I was invited to Parliament to give evidence about why finding childcare for disabled children is so difficult.   

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School photo day

Posted on Jan 30, 2014 | 5 comments

School photo day

Poor May endured several attempts at this hair-do by her inept mama. The poor thing. I could not get the parting right. She was pretty patient considering. She doesn’t enjoy when I remove her tangles but she does love a gentle brush. And the result is major cuteness. Click on photos for the full image: Disclaimer: I did not choose her shirt. That is her school uniform, the smallest size and still it is about two sizes too big. Somehow May’s superior power of cuteness prevails. Want to know more about what it’s like to start school when your child has special needs? Try: So,...

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May returns to school! (Pics!)

Posted on Sep 10, 2013 | 2 comments

May returns to school! (Pics!)

It’s back to school for May! What does this mean for May? It means back on track for all her therapies – physio, OT, visual, SALT – and especially it means receiving the extra attention that her parents can’t always provide at the moment. In two weeks, I’m back in the hospital full-time. I am relieved to know that May will get everything she needs in such a caring environment. May even has the same teacher as last year, and she is amazing. Click on the photos to see May off to...

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What do you think of our theory about May’s pain?

Posted on May 11, 2013 | 7 comments

What do you think of our theory about May’s pain?

May started giggling last night. A frothy, snorting childish giggle that bore no resemblance to the screams of late. It was wonderful. But, May’s troubles were not over. My husband and I escaped for a few hours today, but only down the road to a coffee shop. I wasn’t there long before May’s careworker phoned. “She’s having seizures,” she said anxiously, “and they don’t stop. They last 45 seconds and then stop and start up again.” I raced home. It wasn’t seizures – to which our careworker apologised over and over again but,...

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