Posts Tagged "sibling"

So, I had this conversation with my son…

Posted on Mar 22, 2016 | 3 comments

So, I had this conversation with my son…

Last night, I put my son to bed, said goodnight 15 times and after several hugs and requests for water was finally released downstairs. And then, I heard this: “Mama?” “Yes?” “I want May to be like me.” We talk about May, don’t get me wrong. I never close the conversation down, but he is 4-years old. We talk on that level and until this moment, I’d never heard anything like this. For him, May is May. It’s not shocking, it just is. And, maybe as such he actually deals with it a lot better than I do. He wasn’t even two the first time...

Read More

Should you have another baby?

Posted on Feb 9, 2014 | 3 comments

Should you have another baby?

Last week on BabyCenter, I mused over whether parents should have another child – and specifically I was thinking of parents of children with special needs, but it could be anyone who just loves babies and is an enormous sap. Should you have another baby? Here’s the answer: Three years ago, I felt like an absolute lunatic when I reluctantly admitted to my husband what’d I’d been mulling over for the past six months. “Sometimes,” I said, “I think about having another baby.” “I’d have another baby with you,” he returned with a...

Read More

If you ever doubted having another child…

Posted on Jan 28, 2014 | 3 comments

If you ever doubted having another child…

WARNING: Do not watch the following video with anyone you would be embarrassed weeping in front of. This week on BabyCenter, I shared this video of Trenton and his sister Lindsay, who has Spinal Muscular Atrophy, a genetic disease that causes muscle weakness and progressive loss of movement: There has been no greater, unexpected joy in my life than seeing my children’s relationship blossom. My daughter’s disabilities made me question whether a second child would benefit her or take valuable time away from her. But one thing I thought less of was whether it would benefit him to be...

Read More

The one good thing that happened between all the puking and screaming

Posted on May 30, 2013 | 1 comment

The one good thing that happened between all the puking and screaming

My son is a Vomit Monster. On our trip to Wales this week for one last visit with Nana before THE SURGERY, Ieuan turned into Godzilla. That is, if Godzilla demolished Tokyo by puking. I’ve turned it into a poem: Puke On the way to Wales Puke Coming home from Wales Puke On the car seat Puke On the front seat Puke On the car seat again just to be thorough I’ll tell you what I tell my students when I produce something beautiful – like this poem – for them in lessons: “If you don’t get it, that means you don’t appreciate art.” I’m masking...

Read More

Newsflash: Disabled child has fun and is fun!

Posted on Apr 21, 2013 | 3 comments

Newsflash: Disabled child has fun and is fun!

Our pre-birthday celebrations have begun. May’s fourth birthday – and yes, I can’t believe it and other appropriate clichés – is on Tuesday. Today, we took her to one of her favorite places, Kew Gardens in London. It is a vast playground perfect for those in wheelchairs and otherwise, as it is completely accessible. Today, we visited one of their greenhouses for the first time with May. After a brisk walk chasing Ieuan in the cooling afternoon sun, the tropical heat of the greenhouse was very pleasant. May particularly enjoyed sitting on a bench underneath a pipe...

Read More