Posts Tagged "therapies"

Let’s play the “What we wish therapists would say” game

Posted on Feb 23, 2015 | 1 comment

Let’s play the “What we wish therapists would say” game

After a collective 24 hours in therapies, medical appointments and general ‘Team May’ meetings this week, I have had my share of so-called experts. Because I don’t swear on my blog – and a big hello to my students reading this right now – I’ve decided to imagine a world where so-called experts didn’t make me want to take a sharp implement to their face. In this world, so-called experts say things like: 1. I won’t tell you again that you can’t live in your own home because of May. Until I find you the perfect home, I will not frighten you about this monumental issue of having a roof over your disabled child’s head. 2. It’s really none of my business what your daughter is wearing in this weather. 3. We will mange for one day without that exceptionally minor cushion for May’s seat. No need for three people to remind you of the urgency of that really minor cushion. 4. I saw there was no formula in May’s bag. So, we just gave her milk/juice/water rather than interrupt you at work. 5. I’d really like to hear May’s father’s opinion on this. 6. May looks so comfortable asleep. Let’s just leave her like that to rest. 7. We wiped May down when we saw she had vomit on her because we would be horrified to find any child sitting in their own sick on a special needs bus. Anyone want to add...

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Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a pumpkin at Halloween. Eating ice cream. My word, for some reason, the idea that May would never taste ice cream killed me. I was wrong. She loves it. Today, we ticked off yet another item on the list of ‘1000 things May will never do’. Today, she rode a bike. Next, the...

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How to get your special needs kiddie to LOVE therapy

Posted on Apr 16, 2014 | 3 comments

How to get your special needs kiddie to LOVE therapy

Tummy time? Hates it. Stretches? Not fun. May is severely disabled but she is not lacking in opinions. So how do we get our kiddies who need therapy to do it, when they hate it? It takes a complete re-think of what therapy is. First, what therapy is not: It is not crammed into every free moment of the day. Children need down time too. They need time to just play (you do too!) and to let all the benefits of therapy sink in. It is not everything and anything because, hey, it can’t hurt. Yes, it can hurt if you are wasting your time and money doing something that has no proven benefit. It is not hard work. Good therapy builds on a child’s strengths, it doesn’t force them to do things that are impossible for them. So, what can therapy be? It is inserted throughout the day, in the midst of everyday activities. Therapy should blend into normal life so your child can see first hand its benefits. Try stretches in the bath with lovely bubbles as stimulation. Use snack time to encourage them to bring their hands to their mouths. Make it fun. It should be as fun and as interesting as possible. Do you like doing reps with weights at the gym? It is about the dullest thing in the world. Use things they already love to engage them. May loves music so she hears a lot of it when we want her to do something therapeutic. What does your child love?   Finally, here is a simple example of May “doing therapy” and loving it. It looks like she is playing with her monkey toy. What is she really doing? Lifting her head and holding it midline. Stretching out her arms. Pressing buttons to learn cause and effect. Listening for cues. What tricks do you use to get your kiddie to LOVE...

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You tell me. What’s going on in this photo?

Posted on Apr 15, 2014 | 3 comments

You tell me. What’s going on in this photo?

  So what do you think is going on here? All captions accepted in the comments below!   Answer tomorrow…  

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May has the answer to all your ills

Posted on Mar 27, 2014 | 0 comments

May has the answer to all your ills

A reminder that when the world is throwing a storm of misery your way, one little girl knows what to say. From the archives, here is May, only a few months old. She severely physically and cognitively challenged and yet she knows what you should be shouting. It is the perfect and only response to everyone who is giving you grief. For when you want to play with your child but feel pressure to do therapy. When only a cuddle will do, but a mountain of work awaits. Don’t mess with her. May says, “No!” Warning: cute baby...

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