Posts Tagged "therapies"

Another “impossible” on the 1000 things May would never do – done

Posted on Jul 14, 2014 | 5 comments

Another “impossible” on the 1000 things May would never do – done

Five years ago, I sat in a small office of a hospital with a professor at one side of a desk, my husband’s hand in mine and the weight of a list of all the things my daughter would never ever do, suffocating me. Thousands and thousands of activities pouring through my mind. Everything from toilet training to going to the circus. So, what happened next? Okay – toilet training is out. But there were plenty we did do. May went to the theatre. She performed in a school assembly. She danced (she doesn’t stop bouncing sometimes). Swimming. Travelling. Bed time stories. Carving a...

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How to get your special needs kiddie to LOVE therapy

Posted on Apr 16, 2014 | 3 comments

How to get your special needs kiddie to LOVE therapy

Tummy time? Hates it. Stretches? Not fun. May is severely disabled but she is not lacking in opinions. So how do we get our kiddies who need therapy to do it, when they hate it? It takes a complete re-think of what therapy is. First, what therapy is not: It is not crammed into every free moment of the day. Children need down time too. They need time to just play (you do too!) and to let all the benefits of therapy sink in. It is not everything and anything because, hey, it can’t hurt. Yes, it can hurt if you are wasting your time and money doing something that has no proven benefit. It...

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You tell me. What’s going on in this photo?

Posted on Apr 15, 2014 | 3 comments

You tell me. What’s going on in this photo?

  So what do you think is going on here? All captions accepted in the comments below!   Answer tomorrow…  

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May has the answer to all your ills

Posted on Mar 27, 2014 | 0 comments

May has the answer to all your ills

A reminder that when the world is throwing a storm of misery your way, one little girl knows what to say. From the archives, here is May, only a few months old. She severely physically and cognitively challenged and yet she knows what you should be shouting. It is the perfect and only response to everyone who is giving you grief. For when you want to play with your child but feel pressure to do therapy. When only a cuddle will do, but a mountain of work awaits. Don’t mess with her. May says, “No!” Warning: cute baby...

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When there is no answer

Posted on Feb 28, 2014 | 5 comments

When there is no answer

A couple of weeks ago, a professor running a vision clinic drew my attention to my daughter’s eyes. Her beautiful, big eyes. “She has very large corneas,” he said. “Do you know what happened to May? Has she been seen by the geneticists?” She has. In fact, she’s had two MRIs, many brain scans of various types, three lumbar punctures to her spine, blood tests (hundreds?), genetic photographic testing (where they examine her facial features) along with tests for Strep-B, infection and vitamin deficiencies. They’ve revealed nothing. “How was your...

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