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Happy Birthday May! You are 5!

April 23, 2014 at 21:59

Mama Lewis

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Sorry? May is what??? ((Gasp. Choke. Cough.)) Five?

Yes, it’s happened. And this year my birthday cupcake making ended in disaster. Who knew Thomas the Tank Engine cupcakes (my choice clearly) have both cupcake mix AND frosting mix in the box. And, that they can’t be interchanged.may bday collage

NOTE TO SELF: Don’t open a bakery.

As with previous birthday posts, let the celebrations begin!

May, when you were born, here is what the doctors definitely knew you would be able to do:

- pee

- breathe

Now at FIVE years old you can:

- Bash your monkey toy and play independently with it, setting off buttons etc. for 20 minutes at a time.

- Listen intently and be delighted by bedtime stories. It’s not just music you can remember but lines from books too!

- Chew food like smoked salmon and scrambled egg (she is starting to chomp down now rather than just suck).

- Eat a lot more and a lot faster.

- Mainly cry because you are bored, which is a major improvement from the alternative and shows you want stimulation

- Dance to your favorite song. (You will never guess what it is! Check out the video to hear for yourself.)

- Hold your head in midline comfortably, dropping it with far less frequency. (Again, see the video!)

And now, for that famous video. This is pure delight for us. After all, when peeing and breathing are all you are meant to accomplish, dancing is pretty extraordinary.

And here May is dancing today on her fifth birthday:


The song in the background is “You’re a big girl now” by Bob Dylan. In the video, May is using the Kidwalk walker by Leckey. It’s the same equipment that allowed her to take her first steps.

Want to see how May has progressed? Read her previous birthday posts:

Happy Birthday May! You are THREE!

Happy Birthday May! You are two!

May you are 1.5 years old!

Happy Birthday May! You are 1!

What are the most accessible tourist attractions in the UK?

April 22, 2014 at 20:02

Mama Lewis

0

Vitalise has compiled a fascinating picture of disabled access to attractions across Britain. As a parent who is always telling myself and others to just “Get Out!” I can also speak to the unpredictability and disappointment of attempting this.

This is a great resource and I’ve already ticked off a few more places to add to my Kids All Access… London review series. Enjoy and GET OUT!

Where have you visited on the list? Tell us about it in the comments!

Thank you to the team at Vitalise who created this infographic of the Vitalise Accessible UK Tourism Report 2014.

5 for Friday: Special Needs Round-Up

April 18, 2014 at 22:59

Mama Lewis

4

5 for friday park3Welcome to the inaugural edition of 5 for Friday – the Mama Lewis Special Needs Round-Up.

For the next month, I’ll trial this round-up of highlights from special needs blogs. If it proves popular, I will continue and if not then I’ll proceed as I have been (posting endlessly about May’s superior power of cuteness).

Email contact.stacie@gmail.com with suggestions for next week!

1. It’s Easter Weekend so head to It’s Fun for All at Jonathan’s Bookshelf for some accessible Easter activities. Once you are done reading about their fun fishing game be sure to click through to read about the special easter egg hunt. Truly ingenious idea.

2. 10 Freedoms Every Special Needs Child Should Have on Friendship Circle was inspired by the Jewish Passover holiday but it is a must-read for all parents of children with special needs. How about #3 Freedom from appointments: Schedule one day without medical or therapy appointments. No insurance, medical or therapy-related phone calls, either. Three cheers to that!

3. Take your special needs kiddie and GET OUT. That’s always been my advice. Let’s Go Out: 5 PrAACtical ideas by PrAACtical ACC shows how you can use a walk outdoors to explore language as well as nature.

4. For those of you living in the UK – or just interested in how special needs are met on the other side of the pond – Special Needs Jungle featured a guest post from Steph’s Two GirlsSteph Curtis was asked to be part of the Pathfinder Pilot of the governments new SEN reforms and gives a behind-the-scenes post to what the rest of the country will be shortly experiencing.

5. Finally a personal one for me this week. To celebrate his birthday, my father has thoughtfully decided to take all the grandkids (and their parents) on a Disney cruise. But, how do I begin to prepare for sailing with May? Cruising with special needs children by Glad to be your dad is the first post I’ve come across that is specific to Disney cruising.

Enjoyed this new series on Mama Lewis or have a suggestion to add to the list? Add a comment!

How to get your special needs kiddie to LOVE therapy

April 16, 2014 at 15:45

Mama Lewis

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Happy May!Tummy time? Hates it. Stretches? Not fun. May is severely disabled but she is not lacking in opinions.

So how do we get our kiddies who need therapy to do it, when they hate it? It takes a complete re-think of what therapy is.

First, what therapy is not:

It is not crammed into every free moment of the day. Children need down time too. They need time to just play (you do too!) and to let all the benefits of therapy sink in.

It is not everything and anything because, hey, it can’t hurt. Yes, it can hurt if you are wasting your time and money doing something that has no proven benefit.

It is not hard work. Good therapy builds on a child’s strengths, it doesn’t force them to do things that are impossible for them.

So, what can therapy be?

It is inserted throughout the day, in the midst of everyday activities. Therapy should blend into normal life so your child can see first hand its benefits. Try stretches in the bath with lovely bubbles as stimulation. Use snack time to encourage them to bring their hands to their mouths.

Make it fun. It should be as fun and as interesting as possible. Do you like doing reps with weights at the gym? It is about the dullest thing in the world.

Use things they already love to engage them. May loves music so she hears a lot of it when we want her to do something therapeutic. What does your child love?

Finally, here is a simple example of May “doing therapy” and loving it. It looks like she is playing with her monkey toy. What is she really doing? Lifting her head and holding it midline. Stretching out her arms. Pressing buttons to learn cause and effect. Listening for cues.

What tricks do you use to get your kiddie to LOVE therapy?

You tell me. What's going on in this photo?

April 15, 2014 at 11:07

Mama Lewis

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Happy May!

 

So what do you think is going on here? All captions accepted in the comments below!

Answer tomorrow…