Stacie Lewis’ experience raising hell…
... erm, raising a little girl with severe brain damage. The blog began in 2009 when May was 4 1/2 months old.
Currently, May enjoys bouncing and the dulcet tones of dub step.
Click on May's photo here to link to her best bits, including videos!
Email her or her mama at: email@example.com
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May in the news!
- March 19, 2011 // 56 Comments
- June 21, 2013 // 45 Comments
- November 25, 2011 // 37 Comments
- November 14, 2009 // 36 Comments
- July 18, 2012 // 28 Comments
- November 6, 2012 // 27 Comments
- March 10, 2014 // 3 Comments
- March 6, 2014 // 0 Comments
- March 3, 2014 // 2 Comments
- February 28, 2014 // 4 Comments
- February 25, 2014 // 8 Comments
- By Madgew, March 10, 2014
- By Mama Lewis, March 10, 2014
- By C Smith, March 10, 2014
- By Susan Bell, March 10, 2014
- By Mama Lewis, March 6, 2014
Don’t understand a term?Click here: TO SEE MY GLOSSARY!
Posts about May on BabyCenter!
A bit of praise but is it art? CP Info Dealing with Doctors Fun with May Giveaway Hip surgery Hot Air Ieuan Kids all access... London Leukemia Life with a CP Baby Lycra (Supergirl) Suit May vs The Hospital May's History Medical Records Music Not special needs. More like NEED IT. Nursery Physio Potty Training Preschool Seizures Sleep So-called experts Success! This week I'm... Transportation Visual Impairment
Tonight, my husband and I abandon May for the night. The entire night. He is taking me away to a surprise location for the evening. May will stay in the loving and spoiling arms of her Nana in Wales.
I made out a ridiculously long list of instructions for my MIL. It was so long, I had to apologize as I handed it over. “It’s not that I don’t think you know how to do all these things,” I sputtered.
The list sounded much like any paranoid mother’s list. If I summed it up, it would read, “Feed her and she will sleep.” Instead, it was a single-spaced, small font, volume of dribble.
One unlikely item halfway down the page, embedded between obvious statements such as “Will probably fall asleep taking a warm bottle” and “LOVES bananas” was the heading “In case of seizure…”
May hasn’t had a seizure since her first week in the hospital. But, even writing “seizure” made me queasy. I remember very clearly how she looked, how helpless and how pained.
With any luck, those days are long behind us. In that first week, I thought we’d be chained to our flat, imprisoned simply by the amount of equipment necessary to take May anywhere. Certainly, the idea that my husband and I could shoot off for the night was a total fantasy.
A fantasy come reality. Where is he taking me?